Re: Thalessemia
- From: Blade@xxxxxxxxxx (Deckard)
- Date: Fri, 30 Nov 2007 21:13:41 GMT
On Wed, 28 Nov 2007 06:44:14 -0800 (PST), ajaynjoy@xxxxxxxxx wrote:
My nephew is 13 years old, and is suffering from thalessemia since his
birth....he has one brother 4 years elder to him, and the other one of
same age group......presently we have kept him on once in 15 days
blood transform, but its not working out effectively because of
obvious reasons....please suggest remedy...we are from a normal middle
class background....and staying at
amritsar....thanks....regards....Ajay
'deferoxamine' is perhaps a solution; you should better ask a doctor
than this ng.
If your Thai, here is an old article from the Bangkok Post (June 2006)
that may interest you:
Thalassemia to be included soon in the 30-baht health scheme.
The 30-baht health care scheme is expected to be expanded to cover the
complicated treatment of thalassemia, a group of genetic blood
disorders which affect about 30% of the population, by the end of the
year.
Dr Sanguan Nittayarampong, secretary-general of the National Health
Insurance Office, said thalassemia appears in various forms and
degrees.
The 30-baht scheme presently only provides counselling and blood tests
for the disorder, including couples wanting a clean bill of health
before having children, he said.
Thalassemia covers a host of genetic blood diseases. The main
characteristics are absent or decreased production of normal
haemoglobin. Dr Sanguan said the disease is divided into severe,
moderate and low threat to health.
Patients with a severe condition require regular red blood cell
transfusions and even moderate cases need frequent transfusions. A
side effect of the red blood cell transfusion is a condition known as
"iron overload", which can cause kidney or heart failure.
To remove the iron, patients are given the drug desferrioxamine, also
known as deferoxamine, which must be administered by a slow injection,
or infusion, using a small pump placed under the skin. The pump must
be imported. The drug absorbs the excess iron and eliminates it via
the kidneys.
Dr Sanguan said by the end of this year, 30-baht health insurance is
likely to be extended so patients can have access to the device free
of charge. The scheme, however, will not cover the expensive bone
marrow transplant which permanently cures the disease. He said the
Government Pharmaceutical Organisation is producing desferrioxamine,
tablets which will be offered to the thalassemia patients.
_
Regards,
Mort
.
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- Thalessemia
- From: ajaynjoy
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