Re: Visit to the Doc
- From: "michael adams" <mjadams28@xxxxxxxxxxxxx>
- Date: Tue, 4 Oct 2005 21:34:21 +0100
"hmhawktoo" <NOSPAM@xxxxxxxxx> wrote in message
> > This is fibromaylgia then (at a guess). Given that it's only
> > diagnosed in terms of symptoms, as I understand it - rather
> > than as a result of clinical tests or samples etc, as with ME
> > and other sydrome diseases there can often be a problem
> > communicating the nature of the disease to a doctor.
> > I assume this is correct anyway. At a guess you probably
> > need to see a specialist who's more used to treating syndrome
> > diseases rather than simply wielding a stethascope or writing
> > out routine prescriptions. As they're probably more skilled at
> > communicating and getting the the patient to explain the
> > precise nature of the symptoms.
> A diagnosis of Fibromyalgia is given when exhaustive tests have been
> carried out and a negative result obtained in all. It can be a vicious
> ailment with many sufferers requiring extensive care and medication. Some
> even have to lie on water beds and infused with morphine just to give them
> > This is on the strength of 5 minutes googling anyway.
> On a scale of 1 - 10, Max demonstrates around the 6/7 mark. Not good.
> Google cannot take the place of good diagnosis.
> The national health systen certainly has it's drawbacks one of those being
> the workload of the doctors. As in *any* system there is a prioritisation
> of cases. That they are decided upon by dint of language is a nonsense.
> should know by now that there are specialists and were he to press I'm
> he could be re referred to the pain clinic.
It might not be quite that simple. On my undestanding Fibromyalgia
is an intermittent disease, which means that while the sufferer may
be racked with pain during one period, by the time he or she presents
to the doctor the pain wil have eased and so they will not be in
the correct emotional state to convey the nature of the illness.
A patient whis is visibly in distress is a whole lot different to
a patient who claims they were in distress but might feel inhinbited
subconsciously from wanting to make a fuss. Sitting in a waiting room,
and getting wound up over what would othersie be inconsequential
matters are a hindrance as well, when it comes to a doctor being
able to judge a patients true condition.
In such situaions, with intermittent conditions, effective
communication in both directions is paramount. And in my
limited experience of the Health Service this isn't always
> Fibromyalgia is incurable
It is at present because nobody has established any actual cause.
Any presently understood single physiological function or process
which could give rise to the entire spectrum of symptoms which
the syndrome presents.
Research in the States is presently being conducted on known
conditions and the associated physiological processes which give
rise to specific symptoms which are also part of the FM spectrum,
which are curable, to discover whether there is any possibility
of progress in that direction. And hopefully there is.
There appears to be a lot of information about the condition on
the Internet, and it even has its own support NewsGroups.
Whether they're of any use, is another matter.
> though in years past, age seemed to count in it's diminution. (That was
> when it was called Fibrocytis.) Max knows full well that he must be the
> decision maker in terms of managing his pain. That's no small matter and
> all we (and he) can hope for is that he gets some ease.
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