Re: newbe needing info.please.



Steve,

wrote:

"Second: as the literature clearly states, once the PCa (prostate cancer)
has spread beyond the gland itself, the cancer is systemic and surgery
is *NOT* curative. Repeat: *NOT* curative."

-----------------------------------------------------

That's what the lab was stumped by did it start in the bladder then to the
prostrate or the other way around.

My uro was very surprised to hear PC.

Will see what the UW lab says.

Thanks for the names of the labs I plan on using one.



You're right I don't have the facts yet. I will be meeting with my urologist
to go over the x-rays and bone scans the following week hope by then to have
facts.

I may have left the impression what ever he says I will do.

Thanks



Jeff

"Steve Jordan" <mycroftscj1@xxxxxxx> wrote in message
news:DV%jg.33829$AB3.5873@xxxxxxxxxxxxx
On June 14, Jeff wrote:
Update:
June 5th he did a biopsy he needed to shave off part of the prostate to
get to the tumor which is located at the bladder neck.
in do so he sent in two biopsy one of the prostate shavings and the other
in his words a mixer of tissue from the bladder tumor.
The tumor was 3 cm.
The biopsy report came back with them scratching their heads as to what
is there.
What they see is cancer in the lining of the prostate and the tumor in
the bladder is cancer too.
They can't tell where the cancer started and will send both biopsy to the
U.O.W. for a second opinion.

I cannot tell from this whether Jeff has taken steps to empower himself as
I recommended in my reply to him dated May 7. A word to the wise.....

Second: as the literature clearly states, once the PCa (prostate cancer)
has spread beyond the gland itself, the cancer is systemic and surgery is
*NOT* curative. Repeat: *NOT* curative.

Third: once the locals have finished examining the biopsy specimens, it is
imperative that the specimens be sent to a specialist pathology lab for
expert analysis. The primary reason for this is that literally everything
that is done to treat this disease (if indeed there is disease) from here
on depends utterly on the accurate scoring of the tumor specimens.

This costs ~$350 and insurance and Medicare normally cover the expense.

These are the labs that perform the service (urologists generally know
about them but will not volunteer the information):

David Bostwick (Virginia) [800] 214-6628
Jon Epstein (Hopkins) [410] 955-5043 or 410-955-2162 (Dr. Epstein does not
do ploidy analysis)
David Grignon (Michigan) 313-745-2520
Jon Oppenheimer (Tennessee] [888] 868-7522 Dianon Laboratories 1 [800]
328-2666 (select 5 for client services)
UroCor, Inc. 1 [800] 411-1839

Mine was done by Bostwick Labs and disclosed important information that
was omitted from the report of the local lab.
Looks like I'm going to be treated at the UW hospital for removal of
Prostate,Bladder and the urethra tube.

See above. If it has extended beyond the gland, this will NOT cure the
cancer!
While I'm waiting for the UW this friday he has me in for a lung x ray
and a bone scan.

Which, unless the tumor expresses a high Gleason score, will likely show
nothing and be useless.
Scared you bet wasn't ready for losing all three at the same time.

Jeff might be permitting himself to be stampeded into a treatment (tx)
that is not appropriate. After all, the only certain diagnosis of PCa is
pathological examination of biopsy specimens and *that has not been done.*
Or not reported, at any rate.

If Jeff does not wish to passively accept whatever he is told, he should
take steps to learn about this disease (given that he even has PCa; they
don't really know). "Scratching their heads as to what is in there" is
simply not good enough. If the examination disclosed PCa, what are the
grades and total score? This is not frivolous; it is absolutely vital.

Regards,

Steve J

Also not frivolous, as I cited before: GET THE FACTS!


.



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