Re: newbe needing info.please.
- From: Steve Jordan <mycroftscj1@xxxxxxx>
- Date: Wed, 14 Jun 2006 15:17:05 -0700
On June 14, Jeff wrote:
Update:I cannot tell from this whether Jeff has taken steps to empower himself as I recommended in my reply to him dated May 7. A word to the wise.....
June 5th he did a biopsy he needed to shave off part of the prostate to get to the tumor which is located at the bladder neck.
in do so he sent in two biopsy one of the prostate shavings and the other in his words a mixer of tissue from the bladder tumor.
The tumor was 3 cm.
The biopsy report came back with them scratching their heads as to what is there.
What they see is cancer in the lining of the prostate and the tumor in the bladder is cancer too.
They can't tell where the cancer started and will send both biopsy to the U.O.W. for a second opinion.
Second: as the literature clearly states, once the PCa (prostate cancer) has spread beyond the gland itself, the cancer is systemic and surgery is *NOT* curative. Repeat: *NOT* curative.
Third: once the locals have finished examining the biopsy specimens, it is imperative that the specimens be sent to a specialist pathology lab for expert analysis. The primary reason for this is that literally everything that is done to treat this disease (if indeed there is disease) from here on depends utterly on the accurate scoring of the tumor specimens.
This costs ~$350 and insurance and Medicare normally cover the expense.
These are the labs that perform the service (urologists generally know about them but will not volunteer the information):
David Bostwick (Virginia) [800] 214-6628
Jon Epstein (Hopkins) [410] 955-5043 or 410-955-2162 (Dr. Epstein does not
do ploidy analysis)
David Grignon (Michigan) 313-745-2520
Jon Oppenheimer (Tennessee] [888] 868-7522 Dianon Laboratories 1 [800] 328-2666 (select 5 for client services)
UroCor, Inc. 1 [800] 411-1839
Mine was done by Bostwick Labs and disclosed important information that was omitted from the report of the local lab.
Looks like I'm going to be treated at the UW hospital for removal of Prostate,Bladder and the urethra tube.See above. If it has extended beyond the gland, this will NOT cure the cancer!
While I'm waiting for the UW this friday he has me in for a lung x ray and a bone scan.Which, unless the tumor expresses a high Gleason score, will likely show nothing and be useless.
Scared you bet wasn't ready for losing all three at the same time.Jeff might be permitting himself to be stampeded into a treatment (tx) that is not appropriate. After all, the only certain diagnosis of PCa is pathological examination of biopsy specimens and *that has not been done.* Or not reported, at any rate.
If Jeff does not wish to passively accept whatever he is told, he should take steps to learn about this disease (given that he even has PCa; they don't really know). "Scratching their heads as to what is in there" is simply not good enough. If the examination disclosed PCa, what are the grades and total score? This is not frivolous; it is absolutely vital.
Regards,
Steve J
Also not frivolous, as I cited before: GET THE FACTS!
.
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