Re: "Sensory" type fabrics


It was not my intent to be rude and I admire your dedication. But I
really wondered which settings were failing to provide adequate services
and giving you so little support. Educational, hospital and
institutional settings should all have occupational therapists, skilled
in sensory-motor integration, who would know exactly what works best
with children with sensory deficits.

Pursuant to the IDEA (Individuals with Disabilities Education Act) in
the US, the children you describe would almost certainly be eligible for
Early Childhood programs and, in some States, Infant and Toddler
programs. Such programs should have the types of therapies you describe
as related services and, in the early years, are usually implemented
with parental participation. In addition to humanistic concerns, we've
known for decades that appropriate early therapeutic and educational
services almost always mitigate the need for later, incredibly expensive
(as well as dehumanizing) institutionalization for almost all but a
fraction of a percent of persons with disabilities.

Others here have given you the information you require so I will merely
say that it really angers me that in this day of alleged "no child left
behind", we are finding a dramatic increase in reliance on people of
good will such as you (charity) instead of providing what the law
required as early as 1975. And at the same time that some States are
outlawing abortion or even actively discussing outlawing birth control,
women who give birth to damaged babies are being given less and less
help. No I am not promoting abortion--- just commenting on the irony of
the situation. The measure of a society is how it treats its old and
disabled. It's a damn shame, Cindy, you can't get the support you and
your young charges require. Our leadership is failing the more
vulnerable among us.

Phae


In article <98155$446eed9d$45011449$3951@xxxxxxxxxxx>,
"Cindy" <Sin4sure@xxxxxxxxxxxx> wrote:

Phae,
I work as a nurse in home health. I travel from client to client being kept
in the home. All of these clients are on state and federal health care plans
which don't pay for any of the extras and many times don't even pay for the
necessities either. Most of the family are literally tapped out financially
due to the high costs of raising such children. Many of these children have
extreme mental retardation, cerebral palsy, seizures, blindness/deafness,
have to be fed through tubes placed in their abdomens, paralysis ect
ect.....(I say 'children' even though many are in their 20's, being small of
stature, and mental age of between 0- 2years.)
The one that brought up this idea is a client who is blind and deaf, her
right hand is contracted and her whole world is received through what she
can feel and grasp in her left hand. She is bed bound as we are fighting
with the state/federal agencies to get her a wheelchair , which, in their
infinite "wisdom", they have denied. Her family is wonderful to work with .
I wanted to surprise them with this little gift: )

On the same idea path I was thinking of getting some inexpensive washcloths
and serging some sensory type fabrics to one side that could be used
individually.

Again I apologize for the brain not functioning as yet. I tend to do most of
my emailing early in the am before leaving for work. :)

"Phaedrine" <Phaedrine.Stonebridge@xxxxxxxxxxxxxxx> wrote in message
news:Phaedrine.Stonebridge-2C0790.23234019052006@xxxxxxxxxxxxxxxxxxxxxxxxxxx

In article <1148029112.412206.207410@xxxxxxxxxxxxxxxxxxxxxxxxxxxx>,
"sin4sure@xxxxxxx" <sin4sure@xxxxxxx> wrote:

Forgive the strange subject line bit its 4:30 am here on the east coast
of the US and my brain isnt quite functioning yet...:)
I am a nurse and I work with disabled children. Many of the children
have sensory deficits, ie; blind, deaf, ect. and one in particular that
I work with has only her left hand that she receives any kind of
sensory input. She grasps things that she finds interesting. One toy in
particular she loves to play with is a nylon covered ball suspended
fron her bed. The other is a bag of balls that the bag is made like
those you buy onions in.
What I would like to do is make her a blanket that has many types of
materials that she can 'feel' .
First, I would like to find some nylon, the type used in flags. Anyone
know of a good online store for this?
Second, any suggestions as to other material to add into this blanket?
It must be able to withstand multiple washings. I was thinking some
penne velvet, and fleece but I am at a loss after that. I would like to
add something like tulle, but I didnt think it would stand up to the
use.
Any suggestions would be greatly appreciated!

Cindy

I'm kind of curious about the context in which you're working. A
school, hospital or institutional setting? And what is the nature of
your work with children with disabilities?

--
I fear me you but warm the starved snake,
Who, cherished in your breasts, will sting your hearts. (Henry VI, Shakespeare)
.

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