Re: Idiot Doctors

On Aug 14, 12:28 am, "dangerousb...@xxxxxxxxx"
<dangerousb...@xxxxxxxxx> wrote:
On Aug 13, 7:28 pm, Mark <blueriver...@xxxxxxxxx> wrote:

Anyway, from there the conversation just diminished
into a scenerio where my doctor wasn't able to say
anything which I agreed with, and then she started
mixing up terminologies and losing focus of what I
was saying. So, she gave me a big bill, and walked out.

You got borreliosis?

Bill, I'm suffering man. That's why I bought this computer
last fall and came on the internet, to try and help myself
because I cannot get professional medical help (thus far)
in the illiterate state of South Carolina. I keep getting worse
and getting the doctor runaround. I've already been referred to
a rhumatologist who put me thru every course of arthritis
medicine he had, even though I later found out that I tested
negative for rhumatoid arthritis. After an extended period
of prednisone (which helped the pain) my lifestyle and
activities resulted in 2 broken ribs. Do you know how that
feels? Not good. Then I began to study the mysterious
disease of "Fibromyalgia" that no one seems to know the
origin of. I now believe that it is probably Lymes disease.

I mean, look. I bought a large tract of forest land on top of
a hill, and built a house in the middle of a deer habitat. I
feed wild animals every day, and spend hours outside
landscaping this into a "Victory Garden". Yet, never once
has any doctor even thought of the deer-lyme-habitat
connection. Now my symptoms have disabled me to where
I cannot fly a plane, go out in my boat, play my guitar,
stay out late at night, or even sleep! If something isn't
figured out pretty soon I'm not gonna make it.

Still, I'm fighting this and even attempting to continue
lifting weights and hiking around the property.


For some reason, doctors resist diagnosing this, and they also resist
learning about it. I have three relatives and friends who contracted
Lyme. All were misdiagnosed, including one whose primary refused to
accept the results of a diagnosis performed by a specialist. One of
them went untreated until neurological symptoms developed. All were
only treated after getting pretty aggressive with their doctors.

I told my doctor that Lymes disease is the number one emerging
infectious epidemic in the world, even beyond AIDs, and that
possibly one in every 15 people are infected, and that it's the great
imitator of other diseases! She smirked at me and rolled her eyes.
I asked her how many patients within their large practice have been
diagnosed or are being treated for this. She said NO ONE, because
its..."mostly just up in the New England area"! I told her my
research
revealed 250 people in my area infected, and that this is
underreported
by 90%. I told her it is an unrecognized epidemic. She laughed.

I tried to explain to her that testing is "problematic", and she shot
back at me, "No it isn't!". Then she blathered on some misinformed
nonsense that I knew to be misinformed nonsense. All the while,
SHE WAS HOLDING A COPY OF THIS in her hand which I'd just
asked her to read:


"Dr. Harris concludes, “Most of the standard tests used to detect Lyme
are notoriously unreliable. Explains Dr. Harris, “The initial thing
patients usually get is a Western Blot antibody test. This test is not
positive immediately after Bb exposure, and only 60% or 70% of people
ever show antibodies to Bb.”
Most labs will test first with the Elisa Test, which is only about
30-40% accurate. If the test is negative, they usually do no further
testing. If you are lucky enough to have a positive ELISA test , they
will then follow up with the Western Blot test, which has an accuracy
of 60-70%. This 2 tiered testing procedure was designed by the CDC for
surveillance purposes only! And, there lies the problem. Most testing
facilities and Doctors are using the 2 tier testing procedure to
diagnose LD even though they can be highly inaccurate. This means many
who have LD will test negative and will receive no treatment!
The following statement by Dr. Scott Taylor, DVM, explains this better
2 tier testing procedure: “In defense of the ignorant physicians, much
blame can rest on health officials and the medical establishments that
are not giving clinicians the appropriate information they need to
diagnosis these difficult cases of Lyme disease. The criteria being
used to report Lyme disease by physicians is often set by state health
officials and is often based upon the rigid criteria established by
the Center for Disease Control and Prevention (CDC). This CDC criteria
was established for an epidemiological survey, which was designed to
study the distribution of Lyme disease. The two-step method of the CDC
uses a screening immunoassay for all patients followed by a more
sensitive and specific Western blot only if the screening test was
positive. Unfortunately, this approach was originally intended for
surveillance of Lyme disease in potentially asymptomatic patients, not
for diagnostic purposes in patients with symptoms that are potentially
related to Lyme disease. This criteria was not intended to be used as
a standard for the clinical diagnosis of Lyme disease; the CDC has
clearly stated this. Unfortunately, ignorant health officials and
physicians continue to use these criteria for the clinical diagnosis
of Lyme disease.” www.autoimmunityresearch.org/lyme-disease/
Dr. Sam Donta, MD, did a year long study on Chronic Lyme patients and
he proved the initial ELISA test to be 66%+ inaccurate. www.canlyme.com/labtests.html
Tom Grier, MS, goes on to say, “In my opinion, the ELISA test is
worthless as a diagnostic tool in Lyme disease. It is inconsistent and
inaccurate, and should be discontinued as a tool to diagnose Lyme. If
the NIH and CDC truly believe, as they’ve stated, that the diagnosis
of Lyme disease is to be made on the basis of symptoms, then these
tests should be temporarily banned until each manufacturer can prove
efficacy using human serum. ”
---


Another problem. In the US, insurance companies resist paying for the
treatment, which in later stages involves a long course of IV
antibiotics. Another reason doctors don't want to face it.

I told her, Look, just give me the antibiotics, and make the
prescription
long enough, like...100 days.

She was like, Whaaaat? That too long! No, I'm not
gonna do it.

So I gave her a hundred bucks for nothing and left.

---
Mark LLC
.

Relevant Pages

  • CDC appears to promotes Spread of Lyme Disease
    ... CDC appears to promotes Spread ... Director For Lyme Disease Concerns ... To begin with the CDC states that Lyme Disease is a clinical diagnosis. ... On the whole patients have had very positive ...
    (sci.med.diseases.lyme)
  • Re: More on Klempners deceptiveness
    ... Diagnosis of Lyme Disease ... The second thing, which is entirely seperate, are the CDC surveillance ... consulting academic reference center laboratories. ...
    (sci.med.diseases.lyme)
  • Re: comments on steere, etc.
    ... The Dearborn criteria for serologic DIAGNOSIS ... is seperate and distinct from the CDC case definition. ... to be positive in reportable cases of lyme disease. ... NIH hold on underdiagnosis and relevance of serology in diagnosing most ...
    (sci.med.diseases.lyme)
  • Is The CDC Promoting The Spread Of Lyme Disease?
    ... Is The CDC Promoting The Spread Of Lyme Disease? ... and not for patient diagnosis. ... On the whole patients have had very positive ...
    (sci.med.diseases.lyme)
  • Centers For Disease Control (CDC) is encouraging the spread of Lyme Disease
    ... Nicholas Regush Is The CDC Promoting The Spread Of Lyme ... Director For Lyme Disease Concerns ... and not for patient diagnosis. ... On the whole patients have had very positive ...
    (sci.med.diseases.lyme)