Re: I'm definitely in need of recovery.....

On Mon, 17 Apr 2006 01:43:32 GMT, Gene Cash wrote:

Joe Bednorz <invalid@xxxxxxxxxxxxxxx> writes:

Well, according to all the usual sources, the CPAP stuff is the miracle
cure. Which of course it is not, but that's why they all want to put
you on one.

"Follow the money" would indicate that lucrative long term leases
could motivate excessive claims of their effectiveness.


In my experience, doctors seem to be like those electrical engineers
that have had one programming course and think everything's FORTRAN, and
who spend all their time trying to find what they need in a cookbook of
coding tricks somewhere.

IME as well.


Thanks. Looks like a cheap safe alternative to the surgically
moving your lower jaw forward. (When I read about the surgery I
wondered if there wasn't a better way.)
[snip]
I've had three sinus surgeries to help me breathe through my nose
(to improve my breathing at night). None have worked, but they're
always willing to try again, at my expense.

I hadn't heard about the jaw surgery. You'll notice there's some
adjustable ones where they incrementally tighten them with some sort of
threaded mechanism, to bring the jaw forward.

I'm actually looking at one like that on www.nosnorezone.com. They
also have some items to hold your nose open at night. I just slide a
1" piece of plastic straw in each nostril.


Now the funny thing is I was hoping to get the sinus surgery, and that's
why I was enduring the idiot ENT specialist for so long. Supposedly my
grandfather had sinus surgery in the '60s "done by a doctor friend" that
really helped his sleep. Unfortunately that's all the detail I have, and
he's dead, so it's rather hard to get more information. The Ouija board
has problems with long medical terms.

Try "Nasal valve collapse" or "deviated septum" with "rhinoplasty"
on your favorite search engine.

I got my first surgery by going to the Baylor College of Medicine
facility in the Houston Medical Center. It actually seemed to help
sinus pain for about five years. The limited lifespan had come up in
my research. It didn't do anything for my breathing.

The other surgery didn't help. It was only remarkable because
a) They couldn't wake me up afterwards and b) I wasn't maintaining
adequate blood oxygen with my breathing while asleep. This was on
an outpatient basis.


I slept through both of my sleep studies. I'd kept awake for
twenty-four straight hours to be sure I didn't miss the appointments.

For me, it was trying desperately to stay awake the 11 miles home on the
bike, the morning after. I was praying a cop wouldn't see my wobbling
around like a drunk, and that I wouldn't microsleep. If the sleep study
had been during the day, I would have been out like a light. Of course I
got "WHAT? Of COURSE we don't do sleep studies during the DAY!"
reaction to that.

Which is insane, as day/night reversal is not unusual with sleeping
disorders.


So hopefully they at least found something, unlike me? Why did they need
two of them?

One without the BiPAP, one with. Moderate problems without the
BiPAP, borderline with.

If I'd been thinking straight I'd have refused both. I'd had a
sleep study done twenty years before for the same problem. It didn't
find anything. I'd told the Doctor that several times. He always
acted surprised to hear it.

I stayed on the BiPAP for two months with no improvement. Then I
think mold from the humidity start growing. No way I could sleep
with something forcing mold into my sinuses.



--
All the best,

Joe Bednorz
.

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