Re: CCSVI
- From: "BigArtie" <XXX@.com>
- Date: Mon, 6 Sep 2010 08:59:20 -0400
"evilzona" <daveinohio@xxxxxxxxx> wrote in message
news:c13173d3-d0d1-42a3-8ca5-fccb6f33ad8a@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
On Sep 3, 10:21 pm, Dangerous <attit...@xxxxxxxxx> wrote:
On Sep 3, 7:07 pm, Tick <olt...@xxxxxxx> wrote:
Dora, I would still be more comfortable if all the folks that are
getting the procedure done would document their clinical evals more
closely before and after. Maybe with their primary care if they're
not comfortable with their neuro. I'm seeing a lot of positive feed
back as I sift through the international news but it's all anecdotal
so far. I'd like to see MRI's before and after and updated
functionality scores. The cost of course would have to be factored in
with the procedure itself.
On Sep 3, 1:16 pm, Dangerous <attit...@xxxxxxxxx> wrote:
On Sep 3, 9:32 am, D_Frumiu...@xxxxxxxxxxx wrote:
Dangerous <attit...@xxxxxxxxx> wrote:
Hi all,
Been gone from the NG for awhile being I have a new laptop running
Windows 7. Google usenet sucks. Wish i could use my newsgroup
reader
through Outlook Express but cannot.
I was wondering how this group feels about CCSVI. I am on the band
wagon. Of course my neurologist is not on board as well as my GP.
My
GP would not even give me a referal to be tested for CCSVI even
though
I was paying for it myself through a private clinic.
To date there seems to be about a fifty-fifty split in the studies
that are being done. Initially, Zamboni's study was encouraging to
the
point of being miraculous. Some others have seemed to confirm his
findings. Unfortunately, there have been other studies that don't.
The
good news is that there are numerous additional studies underway,
enough
that one of these days a definite answer may come along.
If you have the "Liberation treatment" it would be extremely
interesting to hear from you how it goes.
Bill
At the moment it is not available in Canada. Dr. T at UBC Hospital
whom is heading a study
has been heard to say. "Now we can debunk these notions of
liberation" His study at the moment
is only first fold on the tests for CCSVI , to see if MS patients have
blocked veins.
He is a neurologist not a Vascular specialists. And he plans to take
a long time to complete the studies
hoping CCSVI will go away and hoping a new drug will hit the market to
pacify us MSers.
Saskatowan is planing to head up their own studies funded by their own
medical finances.
Zamboni himself wants more studies along side of the procedure.
Closest place for me to have the venoplast procedure done is in
Seattle whom just now is starting up.
It is prudent to go close to home for followups as well is you
restenos.
Unfortunatley The Canadian Health care system has driven hundreds out
of Country to have this procedure done.
I am sorry if I am coming across real strong. I do believe in
procedure and am glad more studies are being done.
With 47 or more countries already doing this procedure I am sure they
have enough material to show the benifits .
Time for all the politics amongst the MS Society, Drug companies and
Government to stop and start actually caring
about the people. Mission Statements are falling by the way side and
MSers are getting worse and many do not
have the time to wait while all these politcal fights are happening.
It is all about monies.....
Dora- Hide quoted text -
- Show quoted text -- Hide quoted text -
- Show quoted text -
Tick,
There are tons of before and after video's as well as tons of people
blogging before and after. Many are bloggers blog 3 month, 6 months
and later. If you like i can send them as i find them and read them.
Over 2 thousand have had the procedure
with many more booked. Most neuro's are not wanting to do any follow
ups. Some are amazed and are keeping their mouth shut. Studies being
done now are keeping functionality
scores. Follow up in many places is free. Most going out of country
cannot afford to go back for follow ups and cannot get follow up's in
Canada. In the states it may be different depending
on the neurologist....unless those can find an interventional
Radiologist to give them a follow up.
Dora- Hide quoted text -
- Show quoted text -
Tickwad is one of the many ignorant stupid asses that will sit by
and let ms eat away at his brain while he's waiting for the medical
community to say it's ok to try something. Nothing ventured, nothing
gained.
Agree. I think it's ridiculous.
Same attitude with LDN.
.
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