Re: What's the next step

I believe that the only good spinal tap is that mockumentary about the band
of the same name. It's good practice for a neurologist, however, so
perhaps there might be an intern who could also learn about this
inconclusive way to arrive at some point of non-conclusion.
She'll have some neat scars to remind her of the experience, like I do.
Oh yes, that time I thought my life was over. What silliness I was
convinced of.
These are just distractions from what's really important. Living.
Just live your life with the mystery and honour of MS.
Eat right. Exercise. Get lots of sunshine. Move to Australia,
perhaps. Take 4000 IUs of Vitamin D daily. Take 1000MG Calcium
daily. Take 1000 MG Magnesium daily. Take fish oil or omegas daily.
Eat lots of oily fish. Try to relax when you can. Get a 25OHD
blood test twice a year and maintain an above average vitamin D level.
Forget about lesions, acronyms that describe the state of your MS, or what
your neurologist thinks because he or she is really only piling useless
abstractions before you that they themselves do not understand.
Visit http://www.ms-diet.org/ and have a look around.

....Freddie

"Shelley" <noway@xxxxxxxxx> wrote in message
news:_0XKi.110255$lZ7.108637@xxxxxxxxxxxxxxx
Just because your wife has spinal lesions does not mean she is PPMS. I
have
many spinal lesions, far more than in my brain, and I am RRMS (diagnosed
1994)... probably SPMS at this point. I was diagnosed by history (number
of
definite and disparate attacks over time, and confirmed by MRI. No tap
was
required, but I'd get one in your case, just to see if it is positive or
negative. And, as Steve said, she has had attacks. In the progressive
forms, there are no attacks, just continued progression of diasability.
My
.02, as usual. Shelley


"Steve Wolstenholme" <steve@xxxxxxxxxxxxxxxxxxxx> wrote in message
news:thbof35ac1r2bs2l9scgdvkpbasb5s2mg6@xxxxxxxxxx
On Thu, 27 Sep 2007 22:16:10 GMT, "Jennifer" <jpnospam@xxxxxxx> wrote:

ummm..what does spinal lesions have anything to do with PPMS??? The
location
doesn't matter, it's just a matter if she goes through relapses or if
the
symptoms are always there.


There is some relationship between spinal lesions and PPMS but it's
not a definite rule. I have PPMS but no spinal lesions.

I'd call the MS clinic and ask for a spinal tab.

I was diagnosed with PPMS without a spinal tap.

The best way to differentiate PPMS from other forms of MS is the total
lack of remissions. I have had PPMS for over twenty years and have
never had a remission or a relapse.

Steve





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