Re: What's the next step
- From: "Jennifer" <jpnospam@xxxxxxx>
- Date: Thu, 27 Sep 2007 22:16:10 GMT
ummm..what does spinal lesions have anything to do with PPMS??? The location doesn't matter, it's just a matter if she goes through relapses or if the symptoms are always there.
I'd call the MS clinic and ask for a spinal tab.
Jen (who is RRMS and has a spinal lesion...)
"mazdotnet" <maflatoun@xxxxxxxxx> wrote in message news:1190927779.363969.87560@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Hi,
You've seen my posts from the past month about my wife and possibility
of MS (based on my own research on the internet PPMS since her
doctor's seeing 3 spinal cord lesions). Well, here it goes again,
2 years ago my wife's right arm hand became swallen followed by
tingling feeling in her arm for 4-6 months which all went away.
Because it was swallen we thought it's a mosquito bite initially. A
few months after that, her right thumb became numb and has been like
that for a year. Her GP thought the usual 'pinched nerve, Carpal
Tunnel' so made her do some tests which all came back negative. They
saw a small black hole in her brain which after 2 MRI's was concluded
to be a normal brain pattern. So she went back to her doctor which
sent her for MRI of spine. Based on the MRI report he said it's
probably MS and that she has 3 lesions on her spinal cord. On Monday
we went to a well known MS clinic here where the 1st neurologist said
it might not even be MS. He said the spinal looked a little weird but
he said he doesn't think it's because of MS and that it could be a one
time thing. He send us for some other tests (except spinal tap) which
all came back negative. Meanwhile he talkes to the head neurologist
about the MRI results. He also confirmed that those are in fact her
normal spinal patterns. However, he said he found another spot in her
brain which confirms that she has MS and gave her prescription for
Betaseron. So yesterday we saw another neurologist some place
different he went through her entire record (my wife really felt
comfortable with his decision) and said it's not MS. The brain doesn't
have anything and those are her normal brain patterns. The spinal cord
is probably a one time damage from something she has done in the past
and the 2 MRI indicated that the're probably from long time ago. He
said he will get in touch with MS clinic and share his findings with
them and he told my wife to keep taking her vitamins (Vitamine D and
Omega) and to see him back in 6 months. So now here we are with the MS
clinic saying it's MS and wanting to put her on Betaseron and this
neurologist saying it's nothing. So what could it be? What should she
do? Should she go for the medication just to be safe and risk the side-
effects or should she go with the second doctor? I sort of feel a
little better because they're all saying her spinal cord is either
normal or from something else that happened long time ago (she also
has a curved spinal cord) which would minimize the chances of her
having PPMS. Anyone else has had this problem? Would you go for the
medication? I also hear it's good not to wait long and go on the
medication from the start.
Any help would be appreciated :(
Thank you
.
- References:
- What's the next step
- From: mazdotnet
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