Re: Anyone with neg MRI


"DisKeylady" <csmagura@xxxxxxxxx> wrote in message
news:1141094903.424338.192550@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Gary: I've had MS for over 45 years; it was misdiagnosed for the first
30+ years. In the mid 80's, after a full year of tests - and a
negative MRI - I received a diagnosis of MS as "a diagnosis of
exclusion" - meaning that they really didn't know what I had!

It wasn't until my Eye Dr sent me back to my neurologist, for the new
MRI and the Spinal Tap in 1997 that I found out that I really did have
MS!

Gary, are you on SSDI? Were you able to get on the first time around?

I've been on SSD (not SSDI) since 1992. I had to fight like hell for it. I
was in the midst of a
major exacerbation while trying to care for a terminally ill sister. I
refused to go to the
hospital. One day a lady from Catholic Social Services came in the door
without knocking.
A neighbor had told her that there was some guy with MS trying to care for
his sick sister.
Anyway, she came in just as I was crawling across the floor pushing a tray
of food that I was
going to try to get her to eat. That is when things started to happen. They
got the Army to let
her son come home from Germany and I then agreed to go into the hospital. I
was in the regular
hospital for 1 week of steroid treatments and a month and a half in the
rehabilitation hospital to
learn to talk, and breath, and use a wheelchair and such. Sister died while
I was in there. Prior to
that I had been through 3 vocational rehab centers trying to get back to
work and flunked each time.
Also while I was in the hospital, my senator and representative called me
(them, not their staff) to inform
me that SSD would kick in and that they had both talked to my landlord and I
would not be evicted
and was being moved to the first floor. A United Auto Workers representative
(I'm not a uaw member)
heard about the situation and got on the senator and rep. As I mentioned, I
flunked out of Voc rehab
three times and they finally sat me down and said get it through your head,
"You are not going back to work."
SS denied me each time which is why I was going to get out of hospital and
released into the street.
While I was in there (hospitals) the dean of neurology took me before an
audience of about 150 students
doctors, and other from across the country and introduced me as, "The
epitome of everything wrong with diagnosing MS."
Got so use to fighting like hell I couldn't stop, so I did it for others for
some years. Now I just like to fish and relax.

Gary Stone


.

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