Re: Mis-diag?

I was initially dx'ed as RR. I went on a PhaseIII experimental for Oral
Bovine Myelin. When they pulled the plug on that study and declared the
experimental drug entirely ineffectual, my neuro then said that I had
progressed to Secondary Progressive, and was prescribed now started taking
double Avonex (twice weekly).

This neuro had no real explanation on the medical differences between the
three types of MS, saying that the real differentiation could only be
determined with an examination of MRI's overtime as well as clinical
history. In other words, this neuro was more a clinical/practical kinda Dr,
and not any good (IMO) about the various theories.


"Lossandra" <LWoodhull@xxxxxxxxx> wrote in message
news:1122533602.623008.123310@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> Sorry I can't give you any ideas, but I do have a question. Why is it
> that medications will work on one type of progression and not on
> another. Is it a matter of severity where the drugs do improve PPMS but
> not enough to be significant? Or is it a completely different disease?
>
> Wish I had better thoughts, but it seems almost incompetent for medical
> professionals to take ten years to reconsider a diagnosis. On the other
> hand, I have no idea how difficult it might be to detect the
> difference....
>


.

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