Re: OT aus health group?
- From: terryc <newssixspam-spam@xxxxxxxxxx>
- Date: Thu, 21 Aug 2008 18:06:41 +1000
On Thu, 21 Aug 2008 14:17:30 +1000, Alan S wrote:
What is this survey? Do you have a link?
http://www.45andup.org.au
There will also be a link to http://www.saxinstitute.org.au which is the
research body behind it all.
I am not sure if it is available online. I did see something about signing
up online.
The posted printed survey has your name and address printd on the
form. Details provided by medicare.
It would have been better if your details were on a separate sheet and
the form just contained a link code. This would remove the problem of
completed forms going missing and being missused.
They need the link as they want to repeat this in five years and select
people for more detailed follow up(s).
You have to sign away all medical privacy.
It asks some very detailed medical questions, but none of them are really
useful for advancing any knowledge. 30 years ago, the questions would have
been good to ask, but now I can not see how this terrible lot of badly
asked questions is going to provide useful data for such as possible
causal links.
Despite the claims of being for research, it really seems to be finding
data to support health policy decisions (aka this type of person will
have poor health support as the return is little). If you read both sites,
it becomes clear that there is an extreme shortage of research projects.
they promise the results will be freely and publically published, but
couldn't show me any. They sent a "published paper" but this was really a
add to attract researchers.
Sounds a lot like the Sax Institute desperately wants data so the involved
univerisites can attract funds from collabrative research projects.
Was not impressed by the various logos attached. At least one of them
gives their tick for a few dollars. BTDT. Also been on academic
institutions and they are no different to wider community.
A few of the questions are totally useless; aka do you smoke.
This really needs more detail to be useful, i.e history of past
passive, etc.
I love the one on "do you eat fruit?" where fruit is defined as
item or juice. Now, these are two entirely different beasts in
my book; commercial fruit juice being laden with all sorts of
additives. They have a "meat" question, which includes cheese, but not
other sources of protein. Vegos are stuffed, no "I don't eat meat" option.
Since there were lots of the usual reassuring platitudes on both web
sites, I decided to ask abut an IT audit and anonmisation &
disaggregation* of the data. Oh dear.
"No, this is not something we have undertaken. We do not feel it is
necessary given the procedures we have in place that we feel optimally
ensure security and confidentiality of our data."
Sigh, these are exactly the type of places that get done over and do not
have a clue. I currently report about 10 sites a day that have had exactly
that happen to them.
Since they distribute data to third party researchers (via cdrom), I
wanted to know how they prevented individuals being identified from
someone who obtained "unauthorised" access. That was a total whoosh.
If anyone who has been freely helping other people on the internet returns
the form and their answers (sans identificatin) are leaked, it is a
simple data mining exercise, maybe even just a google search
exercise, to find and locate that person.
Given the stalking that goes on online, you do not want to allow any
chance of
Several of the answers given provide information that would enhance
identity theft enormously and prevent you proving it wasn't you who took
out that $500K mortgage over your home.
A couple could be used by unscroupulous
individuals and groups to target certain people in certain situations. We
have enough exploitation of the poor and lonely now.
That is without considering the commercial value of the list.
Anyway, see what you think.
*disaagredation(sp?) of the data means that researcher do not get given
your individual replies as a whole. If a researcher wanted to see if
some item was a factor in a disease, they are sent a summaryor analysed
data of the results instead of being sent all the individual results to
process themselves.
.
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