Re: Assissted living for me? OT? I dunno ;)


"Billie" <someone@xxxxxxxxxx> wrote in message
news:uTtpj.2888$0w.2661@xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Jim told me our children and my sister are talking about my going into an
assisted living facility for the time he has his surgery, and afterwards.

This idea did not set well with either of us.

We are to have a *family* meeting February 8 to determine what to do with
us. Let me show you what Jim wrote in his weekly newsletter yesterday:

"One of our local general surgeons who had the robotic prostatectomy about
two years ago called me this week to give me his thoughts and impressions
of the surgery. Debbie, Mark, Jim, Donnie, Billie, and I are supposed to
get together next weekend to figure out how Billie and I both are going to
be cared for during my recovery time. That is going to be a nervous and
fearful time for me - I feel like I won't really have control over my own
life - will be dependent on others - fears of being a bother - if it were
Billie taking care of me, I wouldn't have that fear. Billie and I have
never lived where our families live - we always had to take care of
situations and emergencies on our own - there wasn't family there to
help - we always did it somehow - this will be a new experience for both
of us." Jim

Now, put the assisted living idea on top of it, you all knowing how much
Jim and I have faced alone just within these past few years you have known
me here at asd (total since 02).but the critical issues the last year,
year and a half (just ask Susan).

No, maybe we didn't do it as efficiently as if we'd had someone else, but
we *were* seeing doctors all along that time, they were being more
negligent than anyone at that time. We've even faced my pcp about that,
too. His doctor - MY urologist who did my cysto and lithotripsies last
year is doing his surgery, and has assured him well, and told him he'll
talk to anyone, etc. does not paint as grim a picture as our children
have.

There just is not much to our lives to need so much help right now.
Eating is about it. I have plenty of clothing because of having hospital
clothes. Long range, yes, we need to get some help, but for a matter of a
few days, I think Jim and I would be worse off than helped by separating
us. NONE of those involved have lived almost 50 years together. He might
be on the other side of the long living/dining room, but he's still here
in the same house with me, and I can call out "I love you," to him any
time I want to.

Well, beyond this, I'd just be venting, so this is the dilemma. With my
getting better, and all, with my independent spirit, I just think it would
be to depressing for me.

I would like to listen to your thoughts, but I cannot discuss them.
Remember when I came back to ASD two years ago? I have to go back with
this issue and just listen for now, *unless* I can feel comfortable,
non-stressed, then I might discuss, but please try to remember me the way
it was back then. I care for all of you so much; I have not shared this
with anyone else at this point. Might end up blogging my feelings, I do
not know yet, but *will* be having to let my doctors know, and that is
part of the blog's function, so, round and round..... *s*

Ragdoll Billie on the Road to Remission
http://andlifegoesononedayonestepatatime.blogspot.com/
http://www.caringbridge.org/visit/billiewages

Striving for a world without Myasthenia Gravis
http://www.myasthenia.org/amg_whatismg.cfm

Billy,

When I got out of the hospital after being treated for Congestive heart
failure, my cardiologist signed me up to have a home nursing company come to
my house and take care of me. Social Security paid for everything.

Besides a couple of medical nurses, the home nursing company wanted to send
people to clean my house, cook for me, help me bathe and many other things.
I didn't need that kind of help, so I refused it.

Perhaps your doctor(s) or your husband's could set this kind of care up for
you two.

Don







.

Relevant Pages

  • Re: Assissted living for me? OT? I dunno ;) ME to the rescue!!!!!
    ... Talking it out with you all, and of course with, Jim, ... as his surgery on the 19th. ... Gubin, my other doctors, and I have a better insight on all of that. ... Ragdoll Billie on the Road to Remission ...
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  • Re: Ping Billie
    ... I think it is natural to have a certain amount of anxiety about any surgery! ... You might be able to tell if you check out my blog. ... Plus, Jim has been sending it to all our family and friends, and it is really helping in some family areas because I have not talked to anyone about the past couple of years, and all that has happened. ... My neuro said all he hears from Dr. Ali, is Billie, Billie, Billie, he said every little thing that goes on with me, he hears about. ...
    (alt.support.diabetes)
  • Re: Assissted living for me? OT? I dunno ;)
    ... "One of our local general surgeons who had the robotic prostatectomy about two years ago called me this week to give me his thoughts and impressions of the surgery. ... Debbie, Mark, Jim, Donnie, Billie, and I are supposed to get together next weekend to figure out how Billie and I both are going to be cared for during my recovery time. ... Now, put the assisted living idea on top of it, you all knowing how much Jim and I have faced alone just within these past few years you have known me here at asd.but the critical issues the last year, year and a half. ...
    (alt.support.diabetes)
  • Re: Assissted living for me? OT? I dunno ;) ME to the rescue!!!!!
    ... Talking it out with you all, and of course with, Jim, could ... surgery on the 19th. ... Gubin, my other doctors, and I have a better insight on all of that. ... Debbie, Mark, Jim, Donnie, Billie, and I are supposed to ...
    (alt.support.diabetes)
  • Re: Assissted living for me? OT? I dunno ;)
    ... assisted living facility for the time he has his surgery, ...  Let me show you what Jim wrote in his weekly newsletter yesterday: ... Billie taking care of me, ... Now, put the assisted living idea on top of it, you all knowing how much Jim ...
    (alt.support.diabetes)
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