Re: Wobblin' back again

Norton Ghost is a program that runs backups for you
i do a 'computer' back up twice a week
and a 'documents and e-mail' back up every day

theoretically, this will mean that i don't have to lose anything if my HD
crashes

however, it does require you to have 2 HD's on your computer........ i don't
think you can do that with a Laptop

so far, i've been lucky, up until the day when everything went south at
once...... now i'm back up again, after
a long day of re-installing my software and it's licenses

sigh

kate

"Billie" <someone@xxxxxxxxxx> wrote in message
news:1OvWi.3451$%Y6.618@xxxxxxxxxxxxxxxxxxxxxxx
Kate, I got the collar, but it is so uncomfortable, though I believe it
would work. It is a generic size; not one fitted for me. Ha! Another
one-fits-all deal!

It is good for me to be hear and get accolades from you all on everything
because I do not seem to take the bit of muscle strength to heart very
much. I do not see it as much to be excited about, except that it is a
forward direction. I'm still not walking, still having to work so hard to
type a post, to sit up straight, or use my arms for much at all, yet you
all give praise. I have to learn to see the little things as being
excellent and awesome. My endo said yesterday that I looked better, yet I
was feeling very week and shallow, and could hardly keep my head up
straight (myasthenia post fun day on Monday still lingering ;). From the
endo's view, who has been seeing me all along, and during my
hospitalizations, he saw that my eye muscles were stronger, as was my neck
muscles. That was not to be misinterpreted as "to normal" but better than
they were prior the last treatment, which had some pretty awful times. I
needed his kind of assessment as I need your kind of rejoicing. Thanks.

We have not determined if I have salvaged the computer at all, yet. I'm
scared to check. LOL Though a good computer, If I could just keep my
data that would be grand! I've got to use too much energy recapping all
of that. Every now and then I'll call out to Jim, "Oh, no! Such and Such
was on that computer.........aaaagh!" What is a Ghost backup?

Billie

"Tiger Lily" <me@xxxxxxxxxxx> wrote in message
news:5ov774Fol8usU1@xxxxxxxxxxxxxxxxxxxxx
Billie, i hope that your next treatment is over well in advance of
Christmas so you can enjoy that time!

it's excellent that you are regaining some muscle strength ! ! ! that's
awesome!

i hear you on losing the computer..... mine went south at Easter, and i
recovered by a Ghost backup
then another problem arose, and i again had a Ghost back up to fall back
on
the third time, i lost the ghost back up as well :-(
and lost all those e-mail addy's and information that i wanted to keep

i DID keep 'My Documents' so, it wasn't critically bad!

kate

"Billie" <someone@xxxxxxxxxx> wrote in message
news:0qtWi.3433$%Y6.1336@xxxxxxxxxxxxxxxxxxxxxxx
Yes, Kate, the last time was quite a short interval because of the
lengthy stay before it. Because of that, and what we felt was a blast
to my body too soon, that is the main reason for adding a few weeks to
the schedule. So, on to six weeks now, and not too far down the road, IF
things continue to improve, the beginning of the reduction of the
prednisone. My doctors feel they are seeing some muscle strenthing.
Endo yesterday said he say stronger eye muscles, and neck muscles. I
still have to be careful eating. If I remember my eating rules *s* I can
do pretty well. I now have to take the gastroperesis into account. Oh,
well, big deal. It is causing me to have some high number, and where he
lowered my basal in the hospital to prevent the hypos I was having, I
need to raise it back up now.

Thanks for* everything* Kate - lost everything that was on the other one
;-| ...... been meaning and *trying* to write for a while, but no
energy, plus lost everything in the liquid-spilled-computer. That was a
mixed blessing...... lol Been talkig about getting a smaller one I can
more easily handle, but woul rather it have been at our choosing. Jim
was SO very sweet about it. He keeps reading here, but I cannot get him
to post. He might, especially on an OT thread. Being my chef, he fits
in nicely here.

Billie

"Tiger Lily" <me@xxxxxxxxxxx> wrote in message
news:5ojsmbFn28pbU1@xxxxxxxxxxxxxxxxxxxxx
wow! what an update Billie

all the best goest your way.......... congratulations (?) on the new
computer :-)
and thank fully you get a break before the next treatment!

take care

kate

"Billie" <someone@xxxxxxxxxx> wrote in message
news:RrWUi.1311$%Y6.483@xxxxxxxxxxxxxxxxxxxxxxx
No need asking; I am sure you've all been good. Bet I could just
about give you the answers to some of you on the matter.... LOL Here
I am, wobblin' back again, this time dragging a new computer along.
Ya gotta know when is the best time to pour liquid all over your
computer, and send a sad text to your husband. (: He has shown soooo
much improvement in his computer knowledge that I told him I trusted
him to pick me out one himself (some people will say anything for a
new computer ;). I had already been talking about going down in size
of computer because my arms could not pick up nor hold the one I had
very well, and I was having to put it up on bedside table all the
time, out of my lap. Several weeks ago I'd bought a little Acer for
Ashley and felt I could handle it for email and such, which is all
I've been doing lately anyway. Well, you know husbands, he came to
the hospital room with a little bit better of one; still light-weight,
but a bit better than the one I'd bought for her. I like the Vista
OS, but it *is* a bit different to set up and operate; just gotta get
used to it, which is why I'm so long getting back on here.

The computer was the only really good thing about the week in the
hospital. It started off with me having to spend two nights in the ER
waiting area, but they *did* get one bag completed, and one bag going
in when I went to my room. My chronology may be off a bit now, but
the morning they were going to send me home, I woke with what looked
like phlebitis on my right leg, and they started an IV antibiotic
immediately, then orals after that. After being scared to death about
hospital born infections by you all here, I was afraid to leave the
premises until I knew what it was, and where it was headed, and was
scared to go off home alone. Where was I worse off..... Home Alone
XII -- movie sequel in the making *s*, or..... Hospital Bound --
movie spectacular (couldn't think of good words ;) of newsgroup
participant while an inpatient for receiving simple procedure? Da da
da. Da da dum. Mystery. I'm sorry, but misery loves company, and at
home there would just be Jim and me, and at least in the hospital I
would be surrounded by many, and if it got worse (it was snaking up my
leg.... <shudder>) there would be plenty to talk to (I *do* love to
have people to talk to!) if I got sicker and was confined there for a
while. Phooey, I didn't know, so I just told them I was staying put
until the leg was well, or healing. *s* Took cell phone pics of it
and sent them to Jim, and he agreed I should stay. And, hey! I was
missing out on Ashton being home from the hospital, too, so a really,
really big decision to stay put or pop on out of there on to the road
home.

Seriously, I just felt it was the right decision to stay there until
it quit growing up and down, mainly up my leg, and getting redder.
They did bring in an infectious disease doctor, and cultured it, and a
bunch of stuff. I had thought I had a kidney (not bladder) infection,
and a culture proved correct, whereas a simple ua previously had not
produced anything. Will they ever learn to listen to us who have
lived in these bodies for so long? Another neuro doctor was brought in
on consultation about my myasthenia, and my trusty endo was out of
town, but had his partner come in each day checking on me. Heh heh He
was impressed with the good bg control I exhibited what with the
prednisone, and multiple diseases, plus the newest infection raging
through my body. Kept all readings below 120, and had many below
100s. Now, if I had that continuous monitor, we'd know if I had any
high spikes in there or not.

The head and neck aches returned with a vengeance, worse than before,
and they gave me pain med intravenously whenever I had the explosive
pain. I was instructed to return to the neuro if I was still having
them the Friday after my discharge, and it was necessary to do so,
which turned out to be a good thing because we got to have a long
sit-down with the neuron. It was decided on a different course for the
pain med, and also a change in the IVIG schedule. It seemed that we
were just blasting my body with *whatever* even though the treatments
were showing signs of helping in the one area (MG). If any of you are
familiar with meningitis, that is what it is similar to at the end of
the treatment when someone shoots off the cannon ball. Good ole me
who is atypical of most things, this is not typical of IVIG
treatments - the headaches are to a point, just not the placement in
time, place, and duration. We learned to *fix* them during the
administration of the medication, but once it is withdrawn, *that* is
when it seems like my body *rebounds* or some word or other.

So, our plan is to try to go further between treatments this next
time, scheduling the next one for December 15th. This last time, I
had barely had a chance for the side effects to subside, and for us to
get a chance to see how well it did until it was time to go back and
start all over again. I was beginning to feel like being beat up upon
over and over. If I should go into crisis all we have to do is go in
for a treatment sooner. It feels good to know I'm not packing up for a
trip right away again at least. I feel like maybe I can rest up a
bit for a while, and enjoy and benefits I may have gained.

My legs responded favorably this time. That was coming from almost no
use to non-quivery/shaky. I'm still not trusted to try to walk any
distance without assistance. I keep practicing the song, "Weebles
Wobble, but they Can't Fall Down," thinking that when I can sing it,
I'll be able to walk independently. *vbg* I'm trying to figure how
much it is a wobbly head (you know, dizziness etc) and how much is
wobbly legs. There is not much leg muscle; I just noticed recently how
little thigh muscle there is.

Well, here goes weebly, wobbly Billie, teeter toddlin' along, lovin'
you all!
Billie










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Relevant Pages

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    ... Kate, I got the collar, but it is so uncomfortable, though I believe it would work. ... It is good for me to be hear and get accolades from you all on everything because I do not seem to take the bit of muscle strength to heart very much. ... From the endo's view, who has been seeing me all along, and during my hospitalizations, he saw that my eye muscles were stronger, as was my neck muscles. ... That was not to be misinterpreted as "to normal" but better than they were prior the last treatment, which had some pretty awful times. ...
    (alt.support.diabetes)
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