Re: Wobblin' back again
- From: " Frank t2" <a@xxx>
- Date: Fri, 2 Nov 2007 10:30:54 +0100
Hello Billie and WB !
You must feel very good about all the posts that ppl are returning to you
....
Generating so much love just has to keep you well.
I hope you are getting a good discount at thehospital that you frequent
on a too regular basis, for my liking.
Think about the quality of life for yourself.
<hugs>
Frank
"Billie" <someone@xxxxxxxxxx> a écrit ...
No need asking; I am sure you've all been good. Bet I could just about
give you the answers to some of you on the matter.... LOL Here I am,
wobblin' back again, this time dragging a new computer along. Ya gotta
know when is the best time to pour liquid all over your computer, and send
a sad text to your husband. (: He has shown soooo much improvement in his
computer knowledge that I told him I trusted him to pick me out one
himself (some people will say anything for a new computer ;). I had
already been talking about going down in size of computer because my arms
could not pick up nor hold the one I had very well, and I was having to
put it up on bedside table all the time, out of my lap. Several weeks ago
I'd bought a little Acer for Ashley and felt I could handle it for email
and such, which is all I've been doing lately anyway. Well, you know
husbands, he came to the hospital room with a little bit better of one;
still light-weight, but a bit better than the one I'd bought for her. I
like the Vista OS, but it *is* a bit different to set up and operate; just
gotta get used to it, which is why I'm so long getting back on here.
The computer was the only really good thing about the week in the
hospital. It started off with me having to spend two nights in the ER
waiting area, but they *did* get one bag completed, and one bag going in
when I went to my room. My chronology may be off a bit now, but the
morning they were going to send me home, I woke with what looked like
phlebitis on my right leg, and they started an IV antibiotic immediately,
then orals after that. After being scared to death about hospital born
infections by you all here, I was afraid to leave the premises until I
knew what it was, and where it was headed, and was scared to go off home
alone. Where was I worse off..... Home Alone XII -- movie sequel in the
making *s*, or..... Hospital Bound -- movie spectacular (couldn't think
of good words ;) of newsgroup participant while an inpatient for receiving
simple procedure? Da da da. Da da dum. Mystery. I'm sorry, but misery
loves company, and at home there would just be Jim and me, and at least in
the hospital I would be surrounded by many, and if it got worse (it was
snaking up my leg.... <shudder>) there would be plenty to talk to (I *do*
love to have people to talk to!) if I got sicker and was confined there
for a while. Phooey, I didn't know, so I just told them I was staying put
until the leg was well, or healing. *s* Took cell phone pics of it and
sent them to Jim, and he agreed I should stay. And, hey! I was missing
out on Ashton being home from the hospital, too, so a really, really big
decision to stay put or pop on out of there on to the road home.
Seriously, I just felt it was the right decision to stay there until it
quit growing up and down, mainly up my leg, and getting redder. They did
bring in an infectious disease doctor, and cultured it, and a bunch of
stuff. I had thought I had a kidney (not bladder) infection, and a
culture proved correct, whereas a simple ua previously had not produced
anything. Will they ever learn to listen to us who have lived in these
bodies for so long? Another neuro doctor was brought in on consultation
about my myasthenia, and my trusty endo was out of town, but had his
partner come in each day checking on me. Heh heh He was impressed with
the good bg control I exhibited what with the prednisone, and multiple
diseases, plus the newest infection raging through my body. Kept all
readings below 120, and had many below 100s. Now, if I had that
continuous monitor, we'd know if I had any high spikes in there or not.
The head and neck aches returned with a vengeance, worse than before, and
they gave me pain med intravenously whenever I had the explosive pain. I
was instructed to return to the neuro if I was still having them the
Friday after my discharge, and it was necessary to do so, which turned out
to be a good thing because we got to have a long sit-down with the neuron.
It was decided on a different course for the pain med, and also a change
in the IVIG schedule. It seemed that we were just blasting my body with
*whatever* even though the treatments were showing signs of helping in the
one area (MG). If any of you are familiar with meningitis, that is what
it is similar to at the end of the treatment when someone shoots off the
cannon ball. Good ole me who is atypical of most things, this is not
typical of IVIG treatments - the headaches are to a point, just not the
placement in time, place, and duration. We learned to *fix* them during
the administration of the medication, but once it is withdrawn, *that* is
when it seems like my body *rebounds* or some word or other.
So, our plan is to try to go further between treatments this next time,
scheduling the next one for December 15th. This last time, I had barely
had a chance for the side effects to subside, and for us to get a chance
to see how well it did until it was time to go back and start all over
again. I was beginning to feel like being beat up upon over and over. If
I should go into crisis all we have to do is go in for a treatment sooner.
It feels good to know I'm not packing up for a trip right away again at
least. I feel like maybe I can rest up a bit for a while, and enjoy and
benefits I may have gained.
My legs responded favorably this time. That was coming from almost no use
to non-quivery/shaky. I'm still not trusted to try to walk any distance
without assistance. I keep practicing the song, "Weebles Wobble, but they
Can't Fall Down," thinking that when I can sing it, I'll be able to walk
independently. *vbg* I'm trying to figure how much it is a wobbly head
(you know, dizziness etc) and how much is wobbly legs. There is not much
leg muscle; I just noticed recently how little thigh muscle there is.
Well, here goes weebly, wobbly Billie, teeter toddlin' along, lovin' you
all!
Billie
.
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