Re: I Can't Believe It!
- From: "CatEyes" <CatEyes@xxxxxxxxxxx>
- Date: Wed, 11 Nov 2009 08:16:10 -0600
"Michael B" <baughfam@xxxxxxxxxxxxx> wrote in message
Like Lupus, or even Lyme (but not as likely).
Actually, although my Rhuematologist/Immunologist said my bloodwork had
absolutely no signs of Lupus/Sjorgren's/Reynaud's/etc. - the
gastroenterologist, when looking at the additional test results he ordered
said if he were me he would go back for an additional Lupus test (I went to
the Rhuemy/Immuno on my own since so many symptoms of RSD overlap with
Lupus/Sjorgren's/Reynaud's - my current PM doctor sure didn't care enough to
order any additional test, I did that all on my own). He gave me added
orders for the lab work I'm having done next Wednesday - my seni-annual
work-up before I see my PCP (the one who diagnosed me with Fibro 10 years
ago). Yeah, I'm a complete mess - and you're *SO* right Michael and
Earthpots, these things (mostly all problems of the autoimmune symptoms) are
all so close to each other in symptoms that it's almost impossible to tell
which is what. [BTW, all the blood work was done at the same lab, as will
this next be - I go there because they open at 7AM and I can get there and
then to work without missing any work.]
*BUT*... all that said, *none* of those other
diseases/disorders/syndromes/etc. has the symptom of sweating profusely on
one side of the body and almost not at all on the other. DH has watched me
on the treadmill, seen that I *haven't* wiped off one side of me*, just
watched me walk and saw me with sweat pouring off my left side while my
right side stayed dry.
*And good lord, why would I *want* it to be RSD?! If I had a choice, I
think I would pick it to be any other disease on earth except maybe leprosy
to have instead of this one! [I'm not sure, do you still get to go live in
Hawaii if you have Leprosy? Just kidding!!!!] ;>
*BUT* - and there's always another but, I *WILL* let my new PM order
whatever tests he wants even though he has a jump drive full of three year's
worth of tests to look at - I don't care, I reached my out-of-pocket maximum
in early April so none of this is costing me a thing until after 12/31/2009
when my $3,000 deductible goes into effect. I'm putting together a list of
questions for him, if he's the type to not let a patient talk during the
visit (although they said a new patient visit had to be scheduled earlier in
the day since it took longer so maybe, by the grace of gawd, he will
actually listen to my tale of woe), well then I can simply hand him my typed
up sheet. I'm going to post that on another thread for opinions from others
on what I have already, maybe what I need to add or what I need to delete -
and *NO*, I am *NOT* looking for ways to phrase it so that I'll get more
drugs, I'm looking for ways to phrase it so that I'll get better *CARE* even
if that means getting no drugs at all! Gawds this group has got me
On Nov 11, 3:15 am, "earthpots" <earthp...@xxxxxxxxxx> wrote:
Great news, but... and this is a big but; what if you should find out you
don't have RSD? Being that so many disorders overlap one another, and
a common symptomology, that _could_ hapen, ya know? Don't put the nail in
the lid on the coffin just yet, some of these disorders are difficult to
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