Re: Odd Sensations? RSD?
- From: "CatEyes" <CatEyes@xxxxxxxxxxx>
- Date: Mon, 9 Nov 2009 16:50:43 -0600
"kittychats" <eileen_73@xxxxxxxxx> wrote in message
I have NEVER, and I was a nurse, heard of this particular side effect
of a sweating pattern from opitates. That is pure 'sweating for ALL
pores', when it (opiates) doesn't agree and I have seen it.
Ask anyone with RSD for a few years and this sweating experience is
usually present. It is more usual than unusual to have this happen, in
fact, those with RSD that don't have it are aware they are in the
minority. They are hoping it dosen't show up, either... cuz sometimes
a symptom comes late to the game.
That's one of the things that the "Best Doctors" report emphasized - this
"syndrome" is never black and white - it always comes in shades of grey.
" I am still going with join a RSD specific group for $500, Alex."
My system can make any additional illness much more challenging. There
is immune system involvement in RSD.
I *SO* wish I could find a real, live support group for RSD here in Houston.
One that holds weekly meetings - it's *SO* much easier to interact with
people who share the same problems when you are face-to-face.
I've noticed you seem discouraged when I mention something not
working. That doesn't mean nothing helps, at all. I am just saying
with RSD, most success is found with rotating treatments.
I think, with about a year or ten of psychiatric care I might get to a place
where having this syndrome doesn't depress me and make me suicidal. OK,
that was a joke, but with a kernal of truth, OK?
It always helps to know what next step you've got in your pocket. It
helps to know that you are staying one step ahead, period. It means I
have figured that out about RSD. Success lies in breaking the pattern.
I am ready for that shit cuz I got it's number... LOL. That is why I
don't get wrapped up in what's coming next. I expect that it will
eventually duck the treatment. That is it's behavior.
When I feel hopeless, about treatment, I reach out to those with RSD
because maybe their one step ahead is my next move.
The one thing that stands out in my mind in all the web sites I've visited
is one of the biggest that describes the four "stages" of RSD. It explains
that the auto-immune system starts to self-destruct and turn on your major
organs. However, very few RSD patients die of that - most die of suicide.
That's just chilling to think about.
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