Re: I'm Pretty Disgusted

Hey backatcha LoriBoB!

Its sad that we have to go thru so many years of pain to get to what I call
a "livable place". Some days its just a "functional place". I wish there
was a way to offer a newbie to cp a path to that place via a shortcut. But
I guess that's one of them thar things we all gotta find for ourselves and
take whatever bits and pieces others may have to help us make that path for
ourselves. Not an easy road, is it? :)

My top goal with my pain mgt team is "functional living" with *my*
definition of functional. I have been in and out of that place, currently
on the outskirts, but working back into it. Its a way for me to not focus
on the disease(s)/pain/stress/symptoms but rather on a doable, tangible
goal. Sounds corny, but in the best of times I can make it a game.

You are right, not focusing on the bad pain helps alot, just not fucusing on
the bad helps alot!

Works for me :) But I admit it took me awhile to learn and accept this.

Happy
"LoriB.o.B." <banjobabe@xxxxxxxxxxx> wrote in message
news:eafc8a92-a400-49db-b092-8a9d1ed76588@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Hey there hi there ((((CN))))) & ((((Happy)))),
First off, great gettin' to know u ((Happy))! I relate to most of
what u say or suggest & yep, I've btdt too & learned to keep my stress
& pain under some better control by not overdoing stuff (especially!),
Pacing is Most Important & I learned that one w/15yrs or whatever of
cmp/fms/& numerous back probs (for which surgery actually
helped...!!!) Not focusing on the bad pain makes a diff. Even for
moments.

((CN))), great idea! I keep written things to remind me to stay
mellow too!
Kindly,
LoriBoB





On Nov 4, 7:25 am, "CatEyes" <CatE...@xxxxxxxxxxx> wrote:
"Happy" <ubehappy2...@xxxxxxxxx> wrote in message

news:hcqups$rlr$1@xxxxxxxxxxxxxxxxxxxxxxxxxxxxx





"CatEyes" <CatE...@xxxxxxxxxxx> wrote in message
news:7lb855F39mriuU1@xxxxxxxxxxxxxxxxxxxxx
Just sent you an email. Just please don't be too harsh with me - after
hearing about the HepC, getting more of the symptoms of RSD (the
burning
skin, somebody-is-holding-a-lit-torch-against-my-entre-right-side), the
pain medication that was doing the job suddenly, for whatever reason,
not
seeming to work at all, the harsh treatment at my current PM doc, the
possibility that my kidneys as well as my liver may be about shot from
the HepC, getting another "talk" from my manager about the work I have
to
miss for all these goddamned tests, getting the notice of completed
bankruptcy, and on and on.... well, I just a wee bit vulnerable just at
the moment.

Hugs,

CatNipped

Cat,

Well, there's no doubt that your stress level is off the charts. I'd be
willing to bet that stress is the cause of your meds suddenly being
ineffective and your RSD ramping up. As a chronic painer, managing your
stress is critical to a complete, effective pain management plan.

I do get that your OCD tendencies may push your *need* to research RSD
and
HepC but this may very well be working against you and making you sicker
(i.e. hurt more). Controlling self-imposed stress could very well get
your pain level back down, possibly making it unnecessary to change or
increase meds. Perhaps your therapist can help with this. I understand
it isn't easy to just *stop* these thoughts.

To add yet another positive spin (so to speak) on the HepC - I am a
caregiver for a family member with HepC, and type 2 diabetes. Family
member was dx'd with HepC in 1983 is doing well today at 86. Liver is
fine, health problems, including kidney damage are maddenigly because of
this person's denial and unmanaged/refusal to manage diabetes...grrr.
(Another story for another campfire on another day in another
millenium).
Treatment, while not a walk in the park - or a day at the beach for that
matter, was also not the hell some have gone thru. She was able to work
thruout treatment and maybe missed 2 or 3 days in the very beginning -
if
memory serves.

So, I guess my point is, you are stressing over HepC when as yet you do
not have a confirmed dx. Even tho you feel it is 99.9999% likely, what
possible good comes from stressing? Lots of bad, including increased
pain. Do you realize you have posted multiple times about your kidney
and
liver possibly being about shot, HepC treatment being worse than chemo
and
even once a "time I have left here"??? Take one day at a time, you can't
plan this part. This is within your control, choosing not to give in to
*boogey man* HepC - even if you need outside help with getting in
control
of the thoughts (therapist, whatever).

I may be off base, but I think your fellow RDSers are lovingly trying to
say the same about your RSD, i.e. you need to stop obsessing about
pain/symptoms etc. you don't yet have and may not ever have. Please
don't
think I am in any way, shape or form am minizing your situation, pain or
dimissing you, not at all. Been in the hell hole of dismissal myself.
No, I see someone who might be unwittingly, their own worst enemy,
keeping
themselves from the best care and lessened pain - cause its some of the
same behaviors I engaged in.

One more little thing and I'll shut the f*ck up - any chance at all you
can get pushy with appointment setters for tests and what nots to get
first appt in the am or very last in the pm, or Sat if available? This
would minimize time off from work. Another trick is to try and get them
all scheduled on one day back to back. Sometimes, not always, and only
you know your company and managers, if you show that you are doing your
best to be *employee of the month* and maximize the amount of time
you'll
be at work - kiss butt, kiss butt, smooch smooch - it is possible to
*turn around* a manager who may seem frustrated with you and your
medical
issues.

My best to you. This is a tough, tough time - but you'll make it. May
you build the best pain management team ever!!!

Happy (kinda, but wasn't always and still have really, really bad days,
but also have some really, really good days too)

Thank you Happy. You know, I *do* know how much of a "drama queen" I can
be - been that way all of my life (learned it at the knee of the queen of
all drama queens). So I know what you say is true. In fact I'm going to
print out this post (and a few others from those who seeem to have their
shit together) and keep it with me to read over again when I feel myself
going "over the edge" so to speak.

Hugs,

CatNipped





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Relevant Pages

  • Re: Im Pretty Disgusted
    ... Not focusing on the bad pain makes a diff. ... seeming to work at all, the harsh treatment at my current PM doc, the ... the HepC, getting another "talk" from my manager about the work I have to ...
    (alt.support.chronic-pain)
  • Re: Im Pretty Disgusted
    ... the HepC, getting another "talk" from my manager about the work I have to ... ineffective and your RSD ramping up. ... stress is critical to a complete, effective pain management plan. ... oral medication they took before they had the pump put in. ...
    (alt.support.chronic-pain)
  • Re: Im Pretty Disgusted
    ... HepC, getting another "talk" from my manager about the work I have to miss ... ineffective and your RSD ramping up. ... stress is critical to a complete, effective pain management plan. ... oral medication they took before they had the pump put in. ...
    (alt.support.chronic-pain)
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