Re: So..

P my bouts with this thing/cond come and go, no pain to it really, I'm not
even sure it's opiates doing it, it is strange though thanks...Joe

"Paul T. Holland" <pholland@xxxxxxxxxxxxxxxx> wrote in message
news:gqrmgd$pb1$1@xxxxxxxxxxxxxxxxxxxxxx
hey sd - first thing to know is that this isn't a conditon that has 'one'
certain expression or outcome - the good news/bad news is that this is one
of those that expreses in a widely different manner for those who actually
have it - so there is as much reason to think that you would be one of
those on the lesser end...

the short definition is:

"Arachnoiditis is a broad term denoting inflammation of the meninges and
subarachnoid space." - in other words - the lining/membrane around the
spinal cord

http://emedicine.medscape.com/article/336605-overview

"A variety of etiologies [i.e. - causes] exist, including infectious,
inflammatory, and neoplastic processes"

i.e.- an inflamation, bacteria, virus, compression, or injury involving
the spinal cord

here is another link that you may find helpful:

http://www.ninds.nih.gov/disorders/arachnoiditis/arachnoiditis.htm

note that there in a click thru for clinical trials that may benefit you

next, and i don't have any direct knowledge of them, a couple support
groups:

http://www.cofwa.org/

http://health.groups.yahoo.com/group/Arachnoiditis/

hth - be well

paul


StrangeDiva wrote:
It dawned on me a week or two ago that 3 doctors had confirmed a
diagnosis for what I am going through and apparently I mentally blocked
it out till I started having these horrid muscle jerks. You all might
call them twitching, but these are more.. *MORE* than twitching! My body
jerks to where the bed moves, it wakes me up it starts in my legs and
goes to my buttock back, shoulders, head arms neck etc. it's annoying and
hard for me to sleep because of it.

Anyway I digress.. Apparently from what I'm reading this is like a bad
sentence on life or something it's called Arachnoiditis I have no idea of
what to expect from this. I just know it's supposed to be pretty scary.
Anyone know anything about it? BTW I got approved for the SCS Trial but
my psych doc disapproves from a lot of stuff going on at work. pain is
starting to get worse every day and these twitching/jerking things are
not helping anything.

-SD


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