Re: So No Suggestions?

I don't know if this will help anyone who wants to play around with the
theory of my drug problems (seriously, why should you?), but here is a
description of malignant hyperthermia taken from a scientic paper about it
(http://opa.faseb.org/pages/PublicEducators/mh/). Wikipedia also has a good
description of it (http://en.wikipedia.org/wiki/Malignant_hyperthermia).
There's even a Malignant Hyperthermia Association for it
(http://www.mhaus.org/).

I have even theorized that this might be the original cause of my
Fibromyalgia since a reaction to this includes muscular deteriorization.

The following description is exactly happened to me in 1972 when I had
general anesthesia when getting a wisdom tooth pulled. I went under for a
30 minute surgery and instead woke up 8 hours later on life support.

================
"Malignant (extremely deadly) hyperthermia (very high temperature) aptly
describes this nightmare syndrome, which afflicts some young patients and
terrifies their physicians. Whereas anesthesia normally relaxes muscle,
patients experiencing a malignant hyperthermia crisis develop stiff and
board-like muscles. Slow, regular breathing - the usual condition under
anesthesia - increases instead to rapid panting; slow, regular heartbeats
degenerate into fast and irregular patterns; pink and warm skin becomes
mottled with patches of blue; the body becomes hot to the touch, with
temperatures rising by 6 degrees an hour, to peak readings sometimes
exceeding 108 degrees Fahrenheit; stable blood pressure plummets
dangerously.

As muscle cells deteriorate, massive amounts of potassium, acid, and
proteins are released into the blood, deranging the body's chemical balance.
The heart pumps poorly and irregularly, the kidneys clog and stop making
urine, the liver fails to detoxify the body's waste products, the blood
clots improperly, and the brain cells begin to die from lack of oxygen,
fuel, and excessive heat. For eight of every ten patients suffering from
malignant hyperthermia, routine anesthesia degenerates rapidly into a death
spiral. Questions abound."
================

Outside of anesthesia, some things that might normally slow down a person's
metabolism will speed mine up instead and vice-versa. There are some types
of sleeping pills (not Ambien, thank gawd) that will keep me awake and
"speeding" my @$$ off with heart palpitations and extreme sweating.

So far, my PM doctor has dismissed this medical history and does not take
this into account in her prescriptions. I don't know of any doctors who
might consider this in their diagnosis since this is a very rare genetic
disorder without a great deal known about it. Not only that, but telling
them about having such weird reactions to drugs causes most doctors to
dismiss me out-of-hand and think that I am either crazy or that I am an
addict trying to get a particular type of drug. What I've come to do in the
past is just try not to take any kind of drug that I don't already know is
safe for me to take.

Hugs,

CN



"CN" <ChattyCatty@xxxxxxxxxxx> wrote in message
news:729mqqFomn6gU1@xxxxxxxxxxxxxxxxxxxxx
"OldGoat" <oldgoatmail@xxxxxxxxxxxxxxxxxx> wrote in message
news:gpna1b$trl$1@xxxxxxxxxxxxxxxxxxxxxx
Dear CN,

I didn't understand till doc's post about the kadian not working. You are
going to find yourself between a rock and a horse as if one morphine long
acting med(such as kadian)is a dud, all morphine based medications
(avinza, MsContin and their generic analogues) are going to suck mightily
as well. That does not mean the fentanyl patch, oxycontin or Opana at
PROPER doses are going to suck also. They may all be a variety of fruit,
but all similararities end right there. So is it a metabolism issue or is
it just morphine doesn't relieve pain well for you? If it's the latter,
welcome to the club. But since you are being forced to change take this
as an opportunity, turn lemons in to lemonade and see if you can't find
something that doesn't require the majority of your thought throughout
the day. It's great you don't think or use medication at night. When
you're asleep. when you're unconscious. You only think about the pills
the rest of the time. You don't refer to the pain, you're worried about
the availability of the pills, you can fill your 260 tablets this week,
what about the 300 you saved up from before. They call it hoarding.
I never wanted to be more wrong about someone or something more in my
entire life. But I can only go by your own words and actions. And I don't
want to...

Prove me wrong, I beg you--og

I'm sorry, OG, I'm new to all this. As I've mentioned before, I've never
in my life taken anything stronger than Advil before now. I had a kidney
stone stuck in the walls of my bladder and they had to go in with a
catch-basket to stretch out the wall and get the stone inside so they
could pull it out. They had a catheter going all the way up to my left
kidney. They wanted to put morphine in my IV but I wouldn't let them -
they settled for giving me an Advil. Same story with my shattered wrist.
I don't know why, maybe it was how/when/where I was reared - I've just
always been this way. I've always had extreme allergies and almost died a
couple of times as the result of taking medications - that could also have
something to do with it.

When I tried the Kadian, I took my first one at 6:00PM. I didn't feel any
relief from the pain at all and went to bed at 10. When I woke up the
next morning I ran for the bathroom and started puking - and kept puking
all day long. I was so dizzy I could hardly stand up. And guess what,
still no pain relief.

The other "long lasting" pain pill I tried wore off after 2 hours, so I
was left with pills that said "take one every 12 hours" and had to suffer
for 10 hours before I could get another 2 hours of pain relief. Again, I
don't know why I'm like this - I've always had really weird reactions to
drugs. I have malignant hyperthermia and almost died once from
anesthesia, but I don't know if that has anything to do with it.

I'm not "hoarding" or "stockpiling" the Oxycodone - I take as many as I
need to control the pain (not to the point of no pain or I'd be
over-dosing). Just doing that left me with 300. Yes I am dragging my feel
when it comes to wanting the Oxycodone - this is the ONLY thing in 3 years
that helps my pain without making me too sick to work. It doesn't relieve
all the pain, yes I still get really bad pain days. But at least this
allows me to work.

Now, don't hold back, I won't get any innuendos - I'm not familiar enough
with any of this to know what the heck you're talking about. Again, I'm
really sorry if I've been disappointing you - that was never my intention.
If you'd rather I just not post here then fine, I'll respect your wishes -
you certainly do more here to help people than I ever could and I don't
want to interfere with that.

Hugs,

CN



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