Re: Topamax, Naturopaths, Dantini



On Wed, 04 Jun 2008 21:06:55 GMT, Soggy <dSpEcNaDrNlOin@xxxxxxxxxxxxx>
wrote:

Don't know if anyone remembers but I'd posted back in March that I was
going to be trying topamax. It was supposed to have all the benefits of
neurontin plus migraine prevention and unlike neurontin make me lose
weight rather than gain weight. (Refresher: I have fibromyalgia &
chronic myofascial pain, a million allergies, & sundry other things.)

Started taking it on Easter (March 30th) and was to gradually withdraw
from neurontin while slowly introducing topamax. That first week, I
thought I was going crazy. Of course, I was pms-ing on top of it (that
was really dumb timing of me!). Within 2 weeks, my moods had calmed
down somewhat but then my dad passed away quite unexpectedly so life
became rather insane for awhile there.

Well, without going into ALL of the details of the last couple of
months, even with making allowances for going through the grieving
process, topamax did very little positive for me. It didn't come
through in the sleep department at all. I may not have had a true
migraine but I've been in so much other pain it doesn't really matter.
I've had nights when I couldn't sleep and have lain there feeling like
my nerve endings are on fire. During the day, there's this feeling
similar to pins & needles largely in my hands & feet. Then there's the
sexual dysfunction ... and I'm actually talking about pain which I won't
go into details about. Oh, I have lost some weight (15 lbs) and my
blood pressure has normalized but it's just not worth it.

So, obviously, I've decided to wean myself back off it. The question
is, what to do about the neurontin? I had been taking 2700/day. I'm
down to 1600/day. Do I keep going? My GP is out of town for a couple
more weeks.

It's so frustrating because, other than having a lot of difficulties
with sleep, I was doing really well before I started the switchover.
Now I'm back to struggling just to move much at all.

What does everyone think of Naturopathic doctors? I've actually decided
to go waste some money there.

Has anyone heard of Dr. Daniel C. Dantini? I came across his book at
Amazon. It sounds interesting.

Pat


I believe Topamax was tried to treat off label conditions based on the
success of depakote in treating migraines. I tried it both alone and
with depakote and all it did was hurt my job performance and ruin my
sense of taste.

Apparently some get pain relief and reduced migraines with treatment
with anti-seizure medications but their side effects make them poor
candidates for first line pain and headache treatment. There are many
better choices. Why take drugs that make you fat, lower your IQ and
ruin your sense of taste. Even worse most doctors never tell their
patients about all the side effects and the likelihood of their
occurrence.

Mike
.



Relevant Pages

  • Topamax, Naturopaths, Dantini
    ... It was supposed to have all the benefits of neurontin plus migraine prevention and unlike neurontin make me lose weight rather than gain weight. ... Started taking it on Easter and was to gradually withdraw from neurontin while slowly introducing topamax. ... I may not have had a true migraine but I've been in so much other pain it doesn't really matter. ... I've had nights when I couldn't sleep and have lain there feeling like my nerve endings are on fire. ...
    (alt.support.chronic-pain)
  • Re: Topamax, Naturopaths, Dantini
    ... u off the topamax garbage(tho I know it does help many others. ... neurontin plus migraine prevention and unlike neurontin make me lose ... migraine but I've been in so much other pain it doesn't really matter. ... I've had nights when I couldn't sleep and have lain there feeling like ...
    (alt.support.chronic-pain)
  • Re: Topamax for FM
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  • Topamax for FM
    ... Cymbalta and 50 mg Topamax, as well as 10 mg Ambien. ... several abortive medicines for migraine. ... and some of the other anti-seizure meds. ...
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  • Re: :-) Stand Back, This Might Get Loose
    ... i have tried a few neuropathic drugs,, tegretol, dilantin, neurontin, and ... then Topamax, all of them were ok, i am not sure if there was any clear ...
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