Re: topamax?
- From: "LoriB.o.B." <banjobabe@xxxxxxxxxxx>
- Date: Tue, 11 Mar 2008 01:13:35 -0700 (PDT)
On Mar 10, 11:58 pm, Soggy <SENDmegaallergie...@xxxxxxxxxxxxxxx>
wrote:
Since I haven't posted forever, 1st my background: I have FMS & CMS + most of the related
problems. I take gabapentin for the pain & amitriptylene to help me sleep (& cut down on
migraines).
I met the pain clinic drs today & was given the advice to perhaps gradually replace these
meds with topamax as it would deal with the pain the same as the gabapentin, cut down on
migraines, help me sleep AND instead of making me inclined to put on the pounds (as the
gab & ami do) it would help me lose weight. This sounds wonderful. I've googled it & am
not as sure as I was earlier.
One frustration I have had with the ami is how fuzzy my vision is (no, my glasses are just
fine). The dr said this often happens with the ami but implied the topamax wouldn't.
However, what I've now read says it's a common side effect (or could be much worse).
So, do any of you have experience with topamax?
Pat
******************
O jeez (((Pat)))!!!
I would truly steer you far far away from topamax!!! Yes, it made my
vision worse, made my hair fall out by handfuls & made my body feel
horrible & didn't work at all for my neuropathy! I also had anxiety
attax (another side effect, common I think) & the kicker for me that
scared me half to death was I developed an irregular heartbeat...not
listed as side effect but if u google u see I'm not alone in that!
This all happened in the what, 2 or 3 days I was on it!!!!
Then I suppose there may be those w/migraines it may work for, but
it's another one of those terrible meds...it may have even made it on
the Worst med/ list!
WTH is wrong w/these jerk opiodphobic drs who won't just give us plain
old strong, long-acting narcotics w/o tylenol???!!! O I know, they're
opiodphobic & I live in one of the worst states for it...Wa.!!!
Well, we're fightin' this sort of thing...giving us dangerous off-
label drugs instead of safer painkillers (narcotics)!
ooops, sorry to run off on such a rant! It's just that I'm so mad at
these docs who give us terrible drugs like topamax for cp that I got
involved in doing something about changing the laws (see
PainReliefNetwork.org)
I'm really sorry to rant rant ...lol, I'll stop now, for the moment!
lol,
Seriously, don't take the topamax till u talk to a bunch of ppl & umm,
I'd print out all the testimonials & take it to that dr & tell him/her
I felt he lied to you (about not bothering your already bothered
vision!!!) ! Call him on it for me, k?
Kindly,
(meant...didn't want to scare u off, I just haven't slept yet but am
going now & didn't want the nitemare thought of anyone else takin'
topamax b4 hittin' the sack!!! :)
LoriBoB
.
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