Re: A favor if I may...
- From: painfully aware <movetoheal@xxxxxxxxxxx>
- Date: Sat, 26 Jan 2008 08:54:06 -0800 (PST)
On Jan 26, 2:56 am, "OldGoat" <oldgoatm...@xxxxxxxxxxxxxxxxxx> wrote:
I was going through some overdue emails and I got a request from the folks
at PRN (www.painreliefnetwork.org) asking if I would pass this along, so I'm
passing. If you haven't stopped by their web site recently, please drop by,
take a peek, and add your name, ask friends and family, hell, even ask your
pain docs, to add their names to the membership rolls. You don't have to
give cash (if you can, great, but they know the deal), they're just looking
For those of you that may not know what PRN is about, they're an advocacy
group that comes to the rescue of doctors who are given a hard time about
treating people like us. They're the voice of the patient when the shit hits
the fan. They're at all the government hearings, FDA meetings, all that kind
of thing, advocating better pain control for us, while trying to keep the
government's big nose out of the doctoring business.
And if you haven't been by the site in the last month, drop by. The flavor
of the site has changed. It's a lot more serious, matching the tone of the
fight they're waging. You may even begin to think you have a right to pain
control, while being treated like a human being, not like some criminal.
Be Sure to Check Out the PAYNE HERTZ blog, for people with chronic pain, by
people with chronic pain.
join in at:http://paynehertz.blogspot.com
Thanks for posting this, OG.. I went and signed up and am now
listening to the interview with Dr. Fisher. I have been worried about
posting my feelings of frustration about my pain being under-treated.
Now I realize I am not alone..
I shouldn't be afraid to say "my pain is under-treated" to my doctor,
but I am. The last time I asked if I could take 6 oxycodone (15 mg)
instead of 4 per day, he said "our goal is not to go up but to go
down". Meanwhile he expects me to be walking in place 30 minutes 3
times per day, which I cannot physically do. If my pain was being
properly treated, walking in place would possibly be do-able, but for
now, it's not. I tapered myself off of Oxycontin because the dose
was not therapeutic and I hated how I was reacting/feeling. There has
never been a discussion to replace that long-acting medication. I'm
scared to ask because I don't want to get cut off completely.. I also
know one of his patients that is taking Methadone and 30 mg Oxycodone,
and he snorts and sells his oxy.. and goes days without taking his
methadone just so he can get high from the Oxy.. But I can't get 30 mg
pills. This is assinine! I've thought about saying something to the
doctor, but I'm afraid of the repurcussions, not to mention it's
really none of my business. It just pisses me off, knowing how
responsible I am with my medications, and it's people like this guy
who ruin it for us. (us being those of us who do use medication
responsibly, not to get high)
I feel like I'm playing a game here, and it's my life! Or, quality of
life at least.. When I was seeing the nurse practitioner, because of a
very traumatic visit with the doctor, she had told me that if I wanted
to continue on ANY medication, I had to stop smoking pot.. I told her
"if you're going to treat my pain appropriately, I would consider it,
but until then, I'm not going to give up something I use medicinally."
She has since left, and every visit I have had with this doctor has
since been "okay". He hasn't made me cry, and I realized that if I
acted a certain way, he responds in a way which is less threatening to
me. He hasn't mentioned the urine test (which happened months ago). I
don't know if he just hasn't looked at previous notes from the NP or
what, but I should not be scared to ask for proper pain treatment..
I'm now on Protonix and Zantac, which both cause false positives for
THC in urine tests.. yet I'm still scared. I've been on this same
dose of Oxycodone for a year. Obviously, I've built up a tolerance,
but he has never once mentioned titrating to a therapeutic dose.
I don't even think he looks at my pain levels, because not once in a
YEAR has my pain gone down below a 6. I guess a 6 is satisfactory for
this guy. I have also asked for a referral to another "pain" doctor,
and was told that my doctor is the only one in this area. I don't
have a car right now so searching elsewhere is not an option. I am
hoping that my upcoming visit with my (new) primary care doc will be
positive. I'm going to ask her to prescribe oxycodone for me so I can
stop seeing the pain doctor. We shall see. I'll stop babbling, but
I am glad you posted this link. We need all the help we can get. I'm
just glad to know that it's not only my pain that's being under-
treated. I consider myself rather lucky that at least my pain is
being treated at all.. I have a good (male) friend with, like me, a
severe case of Fibro, and he can't find any pain treatment. He tells
me all the time to be grateful, and I try.
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- From: OldGoat
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