Re: pain management doctor needs our help.

On Oct 2, 7:48 pm, Hawaiian Wayne <birdie...@xxxxxxxxxxx> wrote:
On Oct 2, 1:47 pm, Mike Berkowitz





<mkb...@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx> wrote:
On Sun, 30 Sep 2007 04:52:46 -0000, "jennieandch...@xxxxxxxxx"

<jennieandch...@xxxxxxxxx> wrote:
I know that there is so many problems with all of these attacks on
doctors who write for pain meds and that the DEA thinks that they are
doing good with it all. My pain doctor is asking for our help. He
wants a listing of all of the support and informative sites that we
use. He also wants stories about chronic pain patients of any type.
He said that you can make it annonymous or keep your doctors
information out of it if you feel the need but the more he has the
better. He is trying to use this information to reform AZ law and to
use it to get the federal govt to lay off states and how they treat
pain. He is also hoping that the more he has the stronger of a case
he has with those he is dealing with. Please send what you can to me
and he will use it only to booster our cases with the law makers and
the govt.
Jennie

Has he googled the archives of this newsgroup? Some of us have put a
lot of our experiences in postings. I wouldn't mind communicating with
him directly I am just a little hesitant to tell ALL of my experiences
to someone I don't know at all. I have had some very bad doctor
experiences so I am just a little gun shy.

Mike

I don't want to be one of the "resistors", however, like Mike said "I
am also a little gun shy" to spill my guts to someone I don't know in
the least. Also, I don't mean to sound paranoid, however, wouldn't it
be a "kick" if all this was a clever disguise for a DEA "Data
Gathering Mission" of some sort and all of a sudden "certain sites and/
or elements" start changing or worse yet, vanishing?

I have to give this one some deep thought for a while as I've fought
some very nasty "battles" in this ugly little "war" to get to the
comfort zone that I'm at. I sure as heck don't want to "surrender" any
"classified information" to the "enemy".

Seriously! What the DEA makes us CPer's go through to simply find
COMPLETE relief (by that I mean, as complete as can possibly be) and
not partial relief (which a lot of doctors do by giving such small
dosage increases when a patient really needs a much larger one OR
prescribes VicodenES rather than Oxycontin because they are terrified
of the DEA) really is like fighting a long, never ending WAR. This
life is hard enough living in the pain we do let alone having to fight
to get proper treatment and benefits. Even though I'm in a sort of
"comfort zone" now, suicide STILL crosses my mind at LEAST once a day.
I don't think there is an anti-d out there that can handle the levels
of depression that some of us are forced to live with.

Aloha For Now,
Hawaiian Wayne- Hide quoted text -

- Show quoted text -

Wayne and Mike,
I was thinking about this and my doctor himself does not have a
website at this time, nor does he use email for this purpose. What I
was going to do was take people's stories and if they want to leave
personal information out then I would cut that out and print it out in
word. There would be no data trail other then to me and my doctor
would have this information that he needs. A list of the websites
that you frequent would help him to find where we go for help with
issues and also give him some added resources. I am going to have to
talk to my friend the web designer and see if there are ways to allow
people to post their story on a website without a data trail that the
DEA can take advantage of. This is obviously not going to be an easy
thing and may be out of the realm of what I can do but I want to give
it a try. I totally understand that there are things that you don't
want to share. My doctor is coming up with a template for a short,
brief and to the point way for you to share your story without writing
a novel about how things have been for us.

I don't know how I am going to do all of this, I am sure that I am
going to have to be in charge of a lot of these things myself which I
can do since being on the computer is one of the few things that I can
still do. Raising these concerns helps me when I go to the doctor
next week and see what he thinks he needs the most from us.

Take your time, get to know me more and I will be open with you so
that you can learn more about me. I don't want anyone sharing what
they aren't comfortable with and I don't, DON'T want anyone attacked
by the DEA or any other agency who wants to keep us from our rights to
pain control.

All of this hits my doctor in a very personal way as his own wife is a
chronic pain patient and has fibro. When I talked to him about the
DEA arrests he said that he will continue do treat his patients as
they deserve to be treated because that is what any good human being
should do and he will not let them scare him into treating us like we
are addicts, lepers and shouldn't get treatments that we deserve. It
makes me love him even more then I already did. My kids want to go to
my appointments with me because they love to see him. All of these
things tell me he is a great doctor. You guys don't have the luxery
of knowing him or the honor. I do not consider it an insult that you
want to be careful. I knew that this wouldn't be an easy task.
Jennie
Jennie

.

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