Re: an open letter of rants and rambling with a few points mixed in

On Jul 10, 2:20 pm, Debs <YOURFOOTdebs02...@xxxxxxxxx> wrote:
Well I have posted here at least a couple of times in the past about the
town near me that has these signs along the streets that say, oxy free
zone. I still can't get my mind around that. On top of that, what
exactly does that mean?
Debs



OldGoat wrote:
Dear Dave,

I'd only add that those painful rehabs and procedures and pain beyond
belief, have all been given (pardon a poor pun) a shot, not once, but
multiple times by most of us with the hopes of that cure. When that fails
the proper procedure for the physician and society seems to be to drag out
the 'it's all in your mind", or "you're a wuss". Then the medical hero's
turn their backs on you to torture the next person in hope of a cure.
What do you do when it's all been done?
One other quickie to show how ingrained in to the public psyche a prejudice
against narcotics are, the television ads you mention, the first or second
sentence always contains the term "non-narcotic". It's the new N-word (they
supposedly had a funeral service for the word "***" yesterday, like it's
not going to be used in any records, video, film or conversation any longer.
It was such a big deal I'm probably the only one that noticed the story in
the news. If only it was that easy to get rid of something so disgusting and
hurtful to others).

Sorry, I didn't mean to interject myself in to something that was a private
sort of conversation. You know me, I gotta open my big yap on
everything.--og

"PAINxtreme" <dave...@xxxxxxxxxxx> wrote in message
news:1184096220.756415.165750@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

Cabbi,
I certainly agree that if we are ever in the gunsights of bush/cheney,
the whole shithouse goes up in flames. I think so many things work
into the stigma of pain and its treatments. One is the problem caused
by the true abusers, whether they are addicts or sellers...that fear
does permiate a lot of doctors thinking, and they ruin it for those of
us truly in need. I can even understand it to a degree, when I first
started opiate treatment, the first 2 or 3 times the buzz was actually
delightful, but praise God I had the will and smarts to not chase the
dosage upward, except when the Dr. would titrate my dosage up. I can
see where it can be seductive. The next, and often not talked about
stigma is the ever popular story of "the guy/girl who beat the odds
going through agonizing rehab, and pain beyond belief to be cured."
Those are always very nice stories, and they are inspiring. What
people at large do not understand is those of us in this group, and
chronic painer's don't have that cure waiting for us on the other end
of rehab, or surgery, meds, and a few alternative treatments are all
we have...and no one pats us on the back for having the courage to
continue to live, knowing that we are never going to wake up some
morning and just be ok, ever. A few, and a scant few have the proper
treatment, which is an ok start, but its not even a good enough
beginning, cuz the powers that be are trying to make it an end. One
other stigma, and sometimes this even exists in our own minds, usually
at our weakest and most depressed moments, is that "there's nothing
wrong with you, you just want a free ride in life, so you can just sit
on your ass and be lazy, you're just faking." When I run into those
people id love to have a spike on the heel of my shoe to stomp right
into their instep and ask them how fake that feels. Or inviting people
to come see our life of luxury in a 1974 $2,000 trailer home....that
as it turned out my folks had to buy, cuz we couldnt even afford it
and utilities, meds, and food. also....come see what a mess it is, cuz
my wife has so little energy after working her ass off to have to take
care of 3 kids and a 43 yr old kid who cant dress himself, or shower
or shave without assistance. Or those nice times when talking to
someone I dont even know and I have an audio seizure and start
blurting out all sorts off subconscious stuff....example : "sir do you
have your insurance card with you" answer: yes its outside, im
planting a windbreak on the northside but im afraid of moss growth."
I said that at my appt yesterday. (my kids love those but only at
home, in public they try to hide) so yeah more rambling....But
somehow I wish we could get a movement like we had when I was the
graphic designer, and a support group leader for the RLS
foundation....look at how much attention it gathered, and how much
attention it gets now on t.v., and how requip has become the medical
buzzword....part of their success is that the headquarters is 3 blocks
from mayo clinic...so they had a great place for lobbying. Right now
tv portrays pain as something that "i find for my rheumatoid
arthritis, 2 advil get me right thru the day" well if it does, you
dont have the arthritis ive seen in some people.

ok ill stop now

Cabbi, i think im also going to post this as an open letter....hope
thats cool.
David Richardson
dave...@xxxxxxxxxxxx Hide quoted text -

- Show quoted text -

Aloha All!

Hey Dave, It's wonderful to see you still fighting the fight. Dangit,
don't ever give up on it. As long as you stay as proactive as you can
be about getting the proper pain treatment, your life will (should, at
least) gradually improve. I know you look around and see your wife
doing the things she does and how exhausting it is for her. Hell, my
wife hasn't much wrong with her healthwise (relatively speaking) other
than what comes along with getting older and SHE even has those
moments of severe doubt and psycological pain! I don't think anyone
would take her seriously if they were to listen to HER telling them
how she actually has moments that are just as bad as any I've ever had
because of the severe sense of love and devotion she has for me and
her (our) children. I've actually had to LEARN to not bitch and
complain so much about ME and how I feel on my worst days simply
because I don't want HER to fall into any type(s) of depression or
pain, psychologically and physically (emotionally?).

I haven't caught myself up on what all this talk is about CP being
attacked by the Bush/Cheney camp, but I don't like the "vibes" I'm
getting from it. That's the kind of thing that if it ever became a
reality, would spell the d-e-a-t-h of me...but I digress...

OG, again, you obviously know how I feel when you said "What do you do
when it's all been done?" in your post. That's where I've been since
2001 but managed to keep being productive until January 2005 (more
like Dec. 2004). It's just like you said Dave, there are times when I
feel like I'm just a leech on society by "sitting on my ass". Although
I've NEVER considered my pain to be "all in my head" or "I'm such a
wuss" because it's too evident to me and those that are closest to me
that that isn't the case.

Lastly, but not leastly...debs, I'd LOVE to find the jerk that came up
with the "idea" of posting those signs and ask them how often he/she
takes a "survey" of those "oxy free" zones to make sure that all the
residence in those areas never have to resort to using oxycodone/
contin for pain once in a while. If I ever saw one of those pop up
here, I'd be out the next night dressed in black with mud smeared on
my face taking the damn thing(s) DOWN. If cought taking them down, I'd
also love to take the bastards to court for doing something so
outrageously STUPID.

This was just a venting letter more than anything...thanks for
"listening".

Aloha For Now,
Hawaiian Wayne

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