Re: Hello
- From: "OneTiredGrandma" <OneTiredGrandma@xxxxxxxxx>
- Date: 8 Sep 2005 04:04:54 -0700
X-No-Archive: yes
Welcome to ASC-P Lex. Sorry, like the rest of us you suffer chronic
pain. Becoming involved in a support group can help with the mental
and emotional aspects we suffer as chronic painers. You may also gain
knowlege that will be helpful to you from others in the group. Others
in the group may also gain knowlege from your experiences with chronic
pain.
I wish you luck with your SSI....is it SSI or is it SSDI? SSI is a
needs based program, which takes into consideration the total household
income. SSDI is a program based on your work history and does not care
about what the total household income is. Either way, I wish you luck.
You might want to check out a group on Yahoo called Disinissues. It
is not a chat group, but an information based group with experts like
attorneys, former SS employees and form Disability Insurance employees
giving advice and sharing their knowlege. They can be found at
Disinissues-subscribe@xxxxxxxxxxxxxxxx
I hope you stick around and see how helpful being involved in a support
group can be. Even if that support group is online rather than real
life.
Again, welcome and good luck!
Lex wrote:
> Hi there -
>
> I didn't really intend to get into posting to any of these groups; I've been
> somewhat of an online recluse lately. But I need a support group right now,
> and there are no chronic pain support groups in my area, so...virtual
> support it is, I guess? :)
>
> A little about me: my name is Alexis, aka Lex. I'm a 26-year-old female.
> I've had issues with chronic pain since age 19. Not going to go into much
> detail, but I've got fibromyalgia, IBS, abdominal wall pain, and chronic
> sinusitis.
>
> I've been disabled for the past 2 years, but I make jewelry and have 2
> businesses--Lex's Creations (my handmade jewelry biz), and The Fair Trade
> Bead Shoppe (an online store where I sell fair trade beads from around the
> world). I have no income, only debt, which I think is mainly due to the
> fact that I don't really have the energy it takes to get and keep a business
> running. I get a lot of joy from creating pretty things, especially when
> others appreciate them! I do craft fairs occasionally (but can only do so
> with quite a bit of help).
>
> My parents are supporting me financially, which is an awful situation, but
> unavoidable for the time being. I applied for SSI in July of '04, got
> denied, and appealed; and now supposedly they are processing my appeal. I
> am willing to bet that it'll be at least a year or two--and that I'll have
> to hire an attorney--before I see a penny from the government. My current
> health insurance, which I got through the National Association for the
> Self-Employed via HIPAA, is horrible (but since I got it through HIPAA, I am
> stuck with it for now).
>
> I went through 3 weeks at the Mayo Clinic's Pain Rehab Center in May of this
> year. I did really well with their program, but of course everything gets
> much harder when you get back home. I tried working part-time a few weeks
> after I got back--4 hours/day--and couldn't manage it, which makes me feel
> awful. My main goal for after Pain Rehab was to get back to work. But it
> looks like I need to be self-employed and make my own hours; I just have to
> find a way to make at least half the money I need. I'm also trying to get
> some work as an editor/proofreader for college students or whoever needs it.
>
> My life is totally in limbo right now and I can't stand it.
>
> I live in Arlington, VA with my boyfriend of 4 years. At times, he is very
> supportive; at times he is not. I believe he is more supportive than the
> average person would be; over the 4 years that we've been together, he's
> seen the pain get worse and worse, and I give him a lot of credit just for
> sticking with me, and for not letting me starve. ;) He is a graduate
> student.
>
> I think that's enough info for now. I look forward to getting to know
> you...
>
> Lex
.
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