Re: Member Update/survey
- From: gail <gailgniewosz@xxxxxxxxxxx>
- Date: Thu, 28 Aug 2008 23:32:04 -0700 (PDT)
On Aug 27, 11:11 pm, RoseB <imaros...@xxxxxxx> wrote:
I thought by way of cheering ourselves up and getting this ship back16 years
on course that I would start a new Q & A thread. The questions I have
posed are meant to be positive so that we can think about how far we
have come since beginning this disease ( and I am optimistic that many
of us are doing better). Please remember that this post is meant to be
supportive and not to advance one type of treatment above any other.
We are all different and what works for one, may not work for another.
I am not collecting any data, just looking to conduct a roll call of
sorts.
1. How many years have you had RA or any of its cousins?
MTX
2. What meds are you on?
MTX with cyclosporin
3. What works?
Ice packs to get me up when I was really bad.
4. What complementary practices do you use that have worked for you?
(supplements, heat, massage, accupuncture??)
When people say they have arthritis and they only have a stiff
5. What, if anything, has this disease taught you?
knuckle, you say to your self "thank God they don't really have
arthritis".
Just the will to get up and do the things I want to do = lots of
6. What support do you have as you manage your disease?
prayer.
Life has to go on so forget the pain
7. What tips do you have that help you get through your day?
A cane and elastic supports
8. What assistive devices do you use, if any?
9. What do you know know about RA that you wished you had known when
you first developed RA?
That the new hip I got 6 weeks ago is so wonderful - not a drop of
10. What is good about today?
pain in the hip now for 6 whole weeks. It is just so wonderful to
walk without a limp and that stabbing pain.
I'm going to ask for a new knee next week when I see the specialist.
Rose @}->--
Being educated means that rather than fearing the unknown,
one seeks to understand it.
Please remove "Ima" to reply.
.
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