Re: On topic,,, I guess.

is that really mama char, gwen????? dang! i've missed her.

kate

<sweetpickleNO@xxxxxxxxxxxxxxx> wrote in message
news:b8d31$474247b2$45491df5$22087@xxxxxxxxxxxxxx
Harv, since you brought Mama Char up to date on you, I guess it's time for
me to do an update also. Since my primary family doctor retired early this
year, I haven't really had "my" doctor anymore. Last time I saw my
cardiologist, I told him I really needed a good doctor. He picked up the
phone and called Dr. Carmelita deJesus and made an appointment for me. One
of his nurses said I would love her, Dr. deJesus was her doctor and she just
absolutely loved her. Well, I love her too. She is an internist (my
cardiologist was also before he became a cardiologist). She spent over an
hour with me the first time and had me go for 10 different tests from 6
vials of blood. Went back last week to get results. My potassium and B12
were low and she prescribed for both of those. A B12 shot on Thursday last
week and one a week for three more weeks, then one a month. Then my BP and
cholesterol were high and she prescribed for those. Already taking three BP
meds.

Both my shoulders have been hurting me for a few month; will wake up hurting
and have to turn over. She suggested having my orthopod inject them, but I
go to my RD on January 3 and I'll wait for him. The shots he puts in my
neck are in almost before I can feel them at all so I think I'd rather trust
him for those in my shoulders although he has put them in my hip in the
past. I'm to have another blood test on my potassium this Wed. when I get
my B12 shot. We can't seem to get my coumadin just right and the longest
I've had between protime tests was 3 weeks (just twice) since last November.

When I went to my pulmonologist last month, I had to do another breathing
test even though a CT scan to compare to one about the same time last year
reported no change in scar tissue. But I feel that the fibrosis IS worse
because my shortness of breath and fatigue are worse, even though I sleep
using oxygen. Hope I can find out more when I see him again in January.

This is all I can think of right now, but it's late and I'm very tired, so I
can't guarantee anything!
Gwen






"Harvey R. Stone" <hrstone@xxxxxxxxxx> wrote in message
news:eim0j.232$NY.65@xxxxxxxxxxxxxxxxxxxxxxx

"Charrlygrl1" <Charrlygrl1@xxxxxxxxx> wrote in message
news:a74e3a81-9e09-4c11-88e9-804a8afb2eef@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
On Nov 17, 10:13 pm, "Harvey R. Stone" <hrst...@xxxxxxxxxx> wrote:
Hi All,,,,

Life and how things happen sometimes can sure remind a person how
crow
tastes. It looks like I am going to have to make the appointment with
my
old lung doctor with the charming nurse. The hospital does not seem to
be
able to find a copy of my CT scan and you know who has a copy of
all
of the information from 3 years ago to compare against the new CT scan.
The only good thing about this is they are going to have to dig it
up
for the doctor and can not pass it off to the hospital like they did
with
me. :-) So it goes.

Harv

I've been away for a while Harv, what is going on?
Char

Hi Char,,,, I will gladly catch you up and it is so good to be doing that
with you. 3 years ago I tested positive for exposure to TB and had to go
to a lung doctor for treatment which is 9 months of a potent antibiotic.
My RD said that I only needed 6 months of that and I stood it for 7
months. At the end of those seven months I was so weak, I had to have help
to get out of a chair. The CT scan I had to see how advanced the TB
was,,, showed a great deal of lung scarring across the bottom of both
lungs but none of advanced TB. I was very upset by all of this because at
the time I sang in the choir and sometimes greeted people at the door and
you can not do those things with a case of TB going on. To be on the
safe side until all was known, I changed a great deal of my life.
This time around,,,, it is the amount of recovery time that is needed
when I get winded and I went to my family doctor about that. An X ray
showed a great deal of scarring in my lung and IMO I have lost the use of
about a third of my lungs. My family doctor set me up to have another
CT scan and I am glad we did. The person that tells the doctors what the
scan shows said that I have a thickening in the wall of my heart and
advancing fibrosis or Rheumantic lung with a great deal of scarring. I
have not had my lung doctor appointment yet but I know from the last time
that I will have to go through a great deal of testing for volume and how
well my lungs are working. :-) I know from mowing the lawn how well they
are working but how bad it is,,, I do not know and am going to find out.
I do not know if the rules are all the same for getting a copy of a
persons CT scan but in Texas, the people that do the scan must furnish a
copy on request. After two weeks and 3 visits to the hospital where I
had the CT scan for the TB exposure has failed to come up with a copy.
OOoooh, they came up with a copy of a young girls CT scan taken a year
before mine was taken which really burned me but I did not say much about
it. The lady was so taken back by what they tried to give me,,, so
confused,,, I just gave her all the information about the when's and
what's of my scan,,,, I just asked her to try again,,,, that was a week
ago. Nothing, which forces me to go back to my old lung doctor to have a
CT scan to compare against. I was going to go to another lung specialist
because of the old ones nurse who has Ratchet beat all to hell.
I have had RA since I was about 38 and am 68. I really am not
surprised that my lungs are in bad shape besides I smoked for 30 years and
stopped in 1983. That may of had something to do with how my lungs work
today.
That's about it Char until more testing is done and what the specialist
has to say.

Harv




.

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