Re: Anyone know what this test is?
- From: NotYet1121 <NotYet1121@xxxxxxxxx>
- Date: Thu, 13 Sep 2007 07:45:42 -0000
On Sep 8, 11:39 pm, "d'huit" <threeceda...@xxxxxxxxxxxx> wrote:
((((((((((((((((((((((donnag)))))))))))))))))))) i don't know anything,
except that i care about you and am as glad as you are that lupus was ruled
"Donna G." <DKGBee...@xxxxxxxxx> wrote in message
During my last hospital stay, the doctors drew a boat load of bloodwork,
some of which were specialized tests that had to be sent out to mayo
clinic labs. One of the tests was a TPMT (thiopurine
methyltransferase)? Any of you familiar with this test or had it done
The doctors are thinking I may have something called CVIDS (common
variable immunodeficiency syndrome?)
So far, the tests that have come back abnormal are high sed rate and
high crp which are always high for me,
CH50 162 (ref=52-128),
IGG 460 (ref=620-1520),
IGM 32 (ref=60-370),
and then the TPMT came back at 15.3 (ref=15.1-26.4 .... 15.1-26.4 =
normal, 6.3-15.0 = heterozygous for low TPMT, <6.3 = homozygous for
low TPMT) ) and had a side note that says: In this sample, the TPMT is
at the very low end of normal range. This activity does not allow
reliable designation of this patient as either a carrier or non-carrier
for the TPMT mutation. We suggest careful monitoring this patients CBC.
They thankfully were able to rule out lupus, which they were really
thinking I had, thank goodness!!!
Echo-cardiogram also showed some plueral effusion which hopefully will
explain why, as of late, I have been retaining sooooo much fluid!
Uggggh, never a dull moment in auto=immune land, huh?!!!
1. ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......
I know about CVIDS! I have that. It has to do with low t-cells. No
nothing like aides. What happened with me was that I would get sick
constantly and then no antibiotic would work. You have to have enough
of these t-cells to be able to have antibiotics work. So I had to
have I.V.'s of Gamma. Weekly had to go in for 3 hours and sit in a
chair and get this. Very expensive. $10,000.00 after insurance. The
insurance companies want to call it "experimental" and so we had to
sue them to get them to pay. I later got divorced, lost insurance and
take lots of vitamins, including prenatal vitamins - I'm 51. If I get
sick and can't shake it fairly quickly then it all starts again. Of
course, it's good I'm well right now and for the past few years
because I couldn't afford it. Now when I get a cold -it won't go away
by itself, it always then goes into something else and I get 1000mg of
Rocephen a day for a few days and I'm well again. When I was having
the gamma, I would have dizzy spells and "high" feelings etc. Hope
you feel better.