Re: ASA people who post in chronic pain-need some advice (Paul, Rosie, Johnie, anyone???)

Slow and easy on everything Melinda is the clue. Do not work too hard on
any point - and yes the moxa was a trigger for me. Even doing much physio
triggered pain. We use low intensity for short periods. I wish I could
communicate to you what did feel good in the accupuncture but hard to tell.
Occasionally it would not bother me. Other times it really triggered pain
later in the week.

You can cope but yes it will be hard with Logan. Try if possible to find
some way through the community that she can get a rest from him during the
day for short bits. That will recharge her a little. And the
antidepressant will help with the pain and the depression (I know so says
she who could just not tolerate them for very long even though they did
work. Might need to try another before too long here.)

Hang in there Melinda and remember I will work with her long distance on
some of the relaxation and distraction things if you want. They do work for
chronic pain the best I believe. I could not do without them.

We are behind you all the way M. Grab hold.

Kelly


<shenmei9wise@xxxxxxxxx> wrote in message
news:1174939051.192994.277970@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
On Mar 26, 12:45 pm, "Kelly" <kelly...@xxxxxxx> wrote:
Okay Melinda - time to stop. Too much happening at once again! Glad to
hear you have your feet up though!

If Megan wants ask her to write to me personally. I handle chronic pain
all
the time and have been through similiar things with the neuropathic pain
since the enbrel. The treatment is similiar by the sounds of it. I have
been on pregabilin (lyrica) and it did help but I did find my eyesight
was a
bit wonky with it and my insurance did not cover it. I found gabapentin
works just as well but I have to be careful when I take it and to go up
slowly with it so you don't get fatiqued. The website says they use the
same for RSD. I would also ask if it could be used in conjunction with
something like Keppra - a seizure med. This is a combination for
neuropathic pain and in combination has brought my pain level to about an
8
out of 10. Stopping 3 times a day to lie down and meditate or to do
relaxation exercises helps (elevating that leg when doing them as well).
I
know this is hard with a child but when they nap etc or while they are
watching 30 minutes of a tv program while in a playpen (I know again not
great but better than someone who is in great pain looking after a
child).
Keeping range of motion is mandatory. this is not the same as just
walking
but you would know that. I find ice or heat on the neuropathic leg is
not
always great - it worked better if I had raised my blankets so they
didn't
touch and had lukewarm showers or baths. Not sure if this is the same
for
RSD - she might have to experiment. Antidepressants might be mandatory -
slowly titrating them - both for the pain relief and for the depression.
As you know this can be really real.

As for complementary - well get her doctor to check her b12 levels. This
can be low in diabetic neuroprathy, ms, and some other neuropathic
things -
wonder if it is the same for RSD. If true it might take shots - not just
pills. The usual fish oil pills etc never hurt. I did find although the
accupuncture helped while I was there and for a couple of hours in the
long
run it irritated the nerves more. There were just too many triggers.
when
I stopped I felt better overall - even though I felt great taking the
treatments during the hour.

I can talk to her about the chronic pain though so feel free to send her
quietly to me. As you know I am positive and not dreary and will not
bash
natural, complementary or allopathic medicine. She is in a tough place
with
Logan too! I don't know the system down there but if she can get some
help
with daycare that might help. Maybe even a girl scout(not sure what the
older girls are called down there) who would come and play with Logan
several times in his home to help her - that would earn her badges if
nothing else. I know the girls I helped with here would have loved a
service project like this and the price would have been free and Megan
would
be right with them to advice them if needed.

Hang in there Melinda - sending you a piece of my rope. Disneyland
helped
to make it a little longer for me and I have a bit to share.

Kelly

<shenmei9w...@xxxxxxxxx> wrote in message

news:1174930120.955649.203780@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

So here i am still not mobile after fracturing a knee if two places
and dislocating another knee. Megan was disagnosed with RSD a few
weeks ago, which seems to have developed following a surgical
procedure on her foot. She has been in very severe pain and her bones
in that foot are softening. She is feeling suicidal and depressed and
having a difficult time even taking care of Logan.

I so do not have a grip on RSD and how to treat it, either
allopathically or with complementary medicine. So many things seem to
act as triggers and I have spent probably 20 hours trying to research
this disease and cannot get a clear picture of it or the neurological
pathways it might follow.

Megan is having a hard time as she wades through the kaiser system
trying to get diagnosis, treatment, etc. We need to find a specialist
in the Bay Area; she needs to try to educate herself as to what can be
done

So, should I send Megan to chronic pain newsgroup? Are there links
somewhere that would be good RSD resources (like drdoc's site for
arthritis)? Any suggestions on any thing I can do?

Paul, if you read this:

Didn't Susie have RSD? If I'm not tripping and that is actually the
case, how is she and what treatment did she have?

Rosie, johnie or anyone else that hangs out in chronic pain: I will
have Megan post there-can you be looking for her post and help her
learn the newbie ropes?

Last, I would love it if we can have some ASA prayers for Megan

M



thanks for the info Kelly-I'm passing this along to her. I had that
feeling that acupuncture might be a trigger-for sure moxa is. I will
use ear points on her but no local points. I just cannot imagine how
in the world we are all going to cope with all of this.

well, good info is always the first step and of course, great support

m



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