Re: OTP: PING Ginnie - long @ med history format

Thanks, DeeTee,

Don'tcha feel like the messenger they're gonna kill when you try to
educate them about your condition/special needs? I love my PCP
dearly, but with the 20-some specialists I deal/dealt with, *I'm*
the one who has to coordinate the info that they all need. He just
doesn't feel the need to wade in there and be the point man for
coordinating my care/needs with all of them.

One thing I've found that increases my credibility with the different,
and especially the new - specialists, is a very detailed medical history
that I keep on my computer, and update every few months. I've had
several doctors express great admiration for this document, and
even if they don't say anything about its scope, *it buys me a lot of
credibility*!!!

It's a bear to set up, and sometimes a bear to maintain when I've gone
through a spell of a bazillion medical issues happening. But there's NO way
I can ever retain all these details, AND some of the 'go figure' unexplainable
phenomena listed actually came together and made perfect sense when I
was finally diagnosed with Chronic Fatigue this March.

The whole first page has a table of contents at the very top (it's 10-12
pages long), and the rest of Page One is an exacting list of every
current Rx and OTC *maintenance* med I'm currently on, dosage
and strength, initials of who prescribed it, set or PRN dosing, purpose,
and date that I started taking it.

Then there's a short section that lists the same info for PRN OTC's
that are rarely used. And below that is a short list of the drugs I
recently discontinued, dates I took it, etc. Basically, when I move
a med from the current list to the not-any-more list, I just copy the
detailed listing intact, and just tack on the date it was discontinued.

The second page has a very concise list of existing conditions and
anomalies, listed in order of most bothersome first. Then a short
section of basic health stats like BC, lipids, no exposures to whatever,
dates I quit smoking and drinking, and 2 paragraphs, one to radiologists
about the internal staples and stents I have, and another to anesthesiologists
that states all the stuff they need to know, like my sleep apnea pressure
setting, "no narcan" due to fentanyl patches, my own teeth, need GERD
and nausea meds before being woke up, inhaler if I wheeze from the
anesthetic, etc. EVERYTHING an anesthesiologist would need to know
If I showed up, unable to speak.

Then, there's a section describing very tersely all the surgeries I've had,
dates, hosp, doc name, listed by year, in reverse chronology, most recent
first. Then a similar section of non-surgical hospitalizations, injuries,
illnesses, again most recent first, dates and dr/hosp name. Then a section
of Tests, listing every scan, blood draw, whatever, and where so they can
retrieve the data.

Then a list of inoculations, including Flu and Pneumonia, with dates,
including stuff like tetanus boosters and dates. Then a two-part list of
allergies/sensitivities, first part are the killing-kind like penicillin, second
part is drugs that I need to avoid, listing the bad or questionable reactions
I experienced.

Then there's a very terse Family History of blood relatives, their health
conditions/causes of death, birth and death dates, and goes back to my
grandparents' generation. And listing any genetic stuff that has been
handed down, like my eye prob. AND listing the almost total lack of
family history of major diseases like cancer, early heart problems,
diabetes, etc.

Then there's a list of all my docs/specialists topped by my PCP, and
listed alphabetically by specialty otherwise, phone #, address, hospital
affiliation. Followed by the name, location, and phone # of my druggist,
which is also at the bottom of page 1 with all the drug listings on it.

Then there's TWO (!) pages, double column, listing every drug by brand and
generic name, that I've ever used successfully.

Then I attach the reports from my most recent lumbar and cervical MRI's.
Then - when I can get it to *stay the same* from one month to the other (!!)
is the alphabetical list of every nutritional (etc.) supplement I take, and the
dosage. The only two supplements that aren't on THIS list are on Page One,
because these 2 are taken as though they are Rx medications for my
Chronic Fatigue Syndrome.

AND... after this recent surgery pain med snafu, and considering the
bunion, THR and TKR I have coming up, I'm going to ask my pain doc
to write a document for inclusion in my history that DOCUMENTS my
opiate tolerance problems, with suggestions for pain drugs ands dosages.
No more Shoot The Messenger for me!

Anyhoooo, for whoever has waded through this long post, if you have one
already or set up a new history document for yourself, I hope it helps buy
you more credibility with your docs.


Ginnie >^..^<


You can catch more flies with funny than vinegar.
___________________________________



DeeTee and Bob Taggart wrote:
My surgeon paid no attention to the report from my PM about me needing larger doses of pain med since I'm so tolerant of opiates.

This is my Bob's biggest complaint. I tell him what went on in my appointments and he rants, "Why won't they LISTEN to the patient?" He goes ballistic about this. LOL I told him I want him in the doctor's office with me next time.

DeeTee

"d'huit" <threecedars1@xxxxxxxxxxxx> wrote in message news:mp6dnW9JHf9-oWfZnZ2dnUVZ_tidnZ2d@xxxxxxxxxxxxxx
auuuwww right! (except for the pain meds, bummer) be better quickly,
sweetie!

kate


"Ginnie" <ginnies@xxxxxxxxxxxxx> wrote in message
news:IXmKg.13791$Qf.10616@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
I'm posting with one working eye, and gimped from the shoulder
blades up to the tippy-top of mah achin' haid. But I'm not
complaining,
mind you, just stating facts.

HAH!!!

I could use a little whine, but actually it went as well as
expected, except
in the pain meds department. My sturgeon paid no attention
to the report
from my PM about me needing larger doses of pain med since
I'm so tolerant
of opiates. The recovery room nurse was good about more
frequent
Fentanyl in the IV, but that only lasted about 2+ hours
until they put me
in a room for the night. There, it was two 10/325 Lortabs
every 4 hours,
and I was a *TAD* uncomfortable.

I hadn't slept well the previous 2 nights, so I kept conking
out and [snide]
snoring so loud (HINT??) that the nurse finally decided I
needed my
CPAP machine on ME instead of sitting on the nightstand.
[/snide]

This morning, I woke up feeling like I'd been rode hard and
put away
wet AGAIN, and feared I was getting a flare, but 2 pain
pills, a Flexeril, and
3 cups of real coffee (which I don't usually drink) later, I
was just tolerable
again. The anesthesia man stopped by to see if I survived,
and he
apologized for the 'rode hard' part, that I'd had my head
bent back
on the table whilst they were doing grisly things to my eye.

And as for seeing out of that eye, it's padded shut, because
blinking
isn't a Good Thing right now. I tried my new non-prismed
glasses on
the left eye, and I can't read with them, so I don't know if
it's the new
glasses or my left eye is on a sympathy strike for my right.
Means I also
can't tell if the surgery was successful in lining them up
again.

Having no depth perception is a trip! (get it? can't see
feet....trip?...)
<sigh>

It'll all be better tomorrow, after I've had some sleep in
my own bed,
in my own clothes, with my own cat, and my own PILLS.
heeheehee

BTW, there's good news in the SO department, but you'll have to
call me to hear it.

Pirate Hugs,
Ginnie >^..^< ...Clooney sez DIBS on the parrot!


You can catch more flies with funny than vinegar.
__________________________________

Rosemarie Shiver wrote:
You're posting? Before I got around 2 calling you.Ya had the eye
surgery
and it went well? C'mon, spill. <g>

Gimp Hugs from Rosie




.

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