Re: leukocytoclastic vasculitis

Hi Welcome to ASA. Boy oh boy, you have been through it. Many people
here have had the battle with prednisone and what it does to us but when you
need it,,,, what else can a person do. Vacuities is one of the things that
kill people with inflam.arth. I did not see where you said you had one of
the 170 different types of arthritis though. It is a good thing you spent
those 12 days in isolation or you would not be with us today.
Harv
"kiwinoz" <meetthemaker1@xxxxxxxxxxxxxxx> wrote in message
news:1153027186.729367.213910@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
I was diagnosed in March 2006 as having LCV after a biopsy on an ulcer,
that wouldn't heal. Despite 3 courses of antibiotics, the thing
wouldn't heal so I came to outpatients for a 2nd opinion, as I also had
a very high ESR reading. I was treated with a seaweed type of matting
that gave me an infection, I was then treated with a gel, that did
nothing. Next came 25mg of prednisone daily, which they subsequently
reduced and was on 12.5mg and a topical steriod, it started to heal and
then once again I had another infection and a visit to wound care
clinic, they upped the prednisone to 50mg and I was prescibed comfeel
paste a thick brown goo (reminiscent of dog poo) that I applied every 3
days. Yes it started to get better again, but as I had a disease of the
auto immune system I was also on Imuran (Azathioprine) routine blood
tests shows everything was normal until the last blood test showed I
had no white cells and no neutriphils, so I rushed into hospital where
I stayed for 12 days and 8 in isolation. There I was looked at from
rhuematolgy, dermatology, wound care and infectious diseases.They
decided on a course of Articoat an expensive silver dressing with a
core, that is changed every 3 days, it might be expensive but the
ulcers have shrunk to almost 1/4 of the size they were and this is only
in a month.
I can also report I have now been put on a course of methotrexate with
5mg of folic acid either side of the dose because of the toxicity of
the drug and I am slowly coming off the prednisone. I am now down to
20mg for the next 2 weeks then down every 2 weeks until I to 12.5 for 4
weeks, I hope it gets rid of the fluid and my ballooning face, someone
said it hides the wrinkles.. maybe.. so for those of you that are out
there there is light at the end of the tunnel, I know because I am
coming out of it



.

Relevant Pages

  • Re: leukocytoclastic vasculitis
    ... that gave me an infection, I was then treated with a gel, that did ... Next came 25mg of prednisone daily, ... tests shows everything was normal until the last blood test showed I ...
    (alt.support.arthritis)
  • leukocytoclastic vasculitis
    ... I was diagnosed in March 2006 as having LCV after a biopsy on an ulcer, ... that gave me an infection, I was then treated with a gel, that did ... Next came 25mg of prednisone daily, ...
    (alt.support.arthritis)
  • Re: Help with PORT?
    ... They believed, at that time, that it was caused by taking prednisone for poison ivy and sinus infections, so I can't take the prednisone pills. ... We think I may have started to get this infection during a period of time where we tried to remove the Diflucan from my drug regimen and I became extremely ill ... There are still some procedures that require an IV and for that procedure they usually call in the special IV Team to do it since my 23 years of Prednisone has left me with very bad veins. ... I was told my port can stay in place for years as long as it is flushed regularly once a month with saline and heparin and it does not develop an infection. ...
    (alt.support.arthritis)
  • Re: heres the plan
    ... Tiny bit better today Nann. ... Just the combination of the infection, prednisone and rituxan - just figured it would get better but....Of course I need to get back to my quilting. ... Okay off this computer - I don't type one finger so I keep forgetting and continue to use my hurt finger. ...
    (alt.support.arthritis)