Re: Diane's news

On Sat, 27 May 2006 04:33:37 GMT, "Kelly" <kelly.e1@xxxxxxx> wrote in
alt.support.arthritis:

Diane is keeping me going too. She has become a great friend and what a
wonderful thing that is. Can you imagine - 2 people 2 continents apart
becoming close? We may never meet but after years on this group we feel we
know each other well.

I know what you mean there, Kelly. A group of us who met on asms keep on talking
as an email group. People from the US and Canada, and one important one from
Australia. :-) We have all talked on the phone, a conference call! Can you
imagine with, I think 10 or 12 people? Can you spell bedlam? We have also had
one to one calls when someone is in a really bad space.

The last 3 days have been really hard for some reason - I have cried copious
amounts of tears and hurt like no ones business. Nothing works and I have
felt incredibly isolated.

You don't need to feel isolated, Kelly. I am just over here in Ontario. <waving>
Can you see me? Look just a little farther east.

I did go see my physio today who I haven't seen since December. She said my
right leg has atrophied so badly it looks like it has been in a cast for a
year. The muscles are a mess. This is nothing that all the exercises I
have been doing could help as the spasticity is fighting them. The RA I
knew was bad but she was horrified and amazed at how good my range of motion
was thanks to the constant exercise regime I have

It's a rare woman who can horrify a physiotherapist. I would take that as a
compliment! Get a tee-shirt made that says "I horrified a physio today"

Oh and the hands, shoulders, toes (a real mess) were pretty bad too. no I
believe her words were a disaster. She can't believe I am keeping so much
mobility and am managing my pain so well. Great complement but you know
life goes on and that is what ice bags and timers were invented for - like I
am going to quit quilting (oh and the odd demerol.)

Some days I feel so much more mobility and others, like today, I woke with every
muscle and joint screaming. My RA causes me more misery than the MS. And mercy,
no, don't quit quilting. It is things like that make the world go around.

Anyhow the scooter prescriptions will be made next weeks appointment after
we hear from the neurologist and her opionion. I just wish I could be on a
dmard to stop the flu like, fatique symptoms. I am so low and only you guys
would understand that. My husband is trying but I know he is feeling kind
of helpless.

I sort of feel like your husband at times. His MS is so much worse than mine and
despite range of motion exercises his foot drop worsens and his leg pains get
worse. He gets Botox injections in his calf muscles every three months and that
eases the pain a lot, but he due more shots Monday so is in bad shape now. I
feel especially helpless because, as a nurse, I think I should have been able to
prevent that, and make it all better. Doesn't work that way, does it? :-(

Anyhow, Kelly, you take care, enjoy the little one and feel better soon. And
there is absolutely nothing wrong with whining, you know that though, don't you?
But it always seems as if it is okay for others to whine, but goodness no, not
me! Humans are funny. :-)

---
Joan
.

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