Re: ms and enbrel
- From: "Becky" <becky.mahoney@xxxxxxxxxxx>
- Date: Fri, 31 Mar 2006 07:00:16 -0800
HI Diane,
Mostly leg pain and muscle pain, and sometimes like neck spasm. I have a
little dumbness in the left leg sometimes but mostly muscle aches
everywhere, I didn't get them to often before. My brother has MS quite
severe. I did have an MRI before had and it said that it was basically
normal, they saw a little white spot but sent me to a specialist and said it
was nothing. I have a lot of pain in the hip area, knee area and int he calf
muscles and muscles in upper back and neck, didn't have much of this before
enbrel,. My feet x-rays the other day showed more progression so I guess the
enbrel isn't working either. I have a docs appt. ont he 20th of April.
thanks
Becky
"DianeW" <DiWitt@xxxxxxxxxx> wrote in message
news:1143783349.318193.197140@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Becky - have you communicated with Kelly yet? She is having MS
symptoms. I have MS and RA and there is some question as to exactly
what is going on with me right now. However, I had MS for years before
I started taking Enbrel. Kelly knows of several other people who have
had MS type reactions to Enbrel as well. It seems to me that the
people who get the reaction don't actually get the lesions to show up
on the MRI or a definitive dx of MS. At least the ones I've talked to.
In the first year there were something like 13 out of 88,000 which is
far less than the natural occurance of 1 in 1000 for MS and was
considered statistically insignificant. Amgen doesn't seem to say much
about it like Immunex did. However, there seems to be some
neurological reaction that does take place in some people. What kind
of symptoms are you having and for how long? DianeW
.
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