Re: Update: Amanda and My Full-blown Flare
- From: "DeeTee and Bob Taggart" <ke3iu.no@xxxxxxxxxxxxxx>
- Date: Sun, 29 Jan 2006 22:54:25 GMT
{{{{{{Hanks Household}}}}}}
DeeTee
"Walt Hanks" <walthanks@xxxxxxxxxxx> wrote in message
news:PZidneC3_M9ovUDenZ2dnUVZ_t-dnZ2d@xxxxxxxxxxxxxx
> Sorry I haven't posted in a while. I have been incredibly busy at work.
> Writing textbooks is a lot harder than it sounds.
>
> Anyway, I wanted to give you all an update. We still don't have a firm
> diagnosis for Amanda, but the dx used on the latest lab orders was MCTD.
> She is on prednisone now and is responding well to it - which I'm not sure
> I am happy about.
>
> Amanda's sed rate was up to 46 (0-10 normal) last week, her muscle enzymes
> are elevated, and her liver function was marginal. It all sounds like
> something that is here to stay.
>
> Amanda is handling it all wonderfully. She is a real trooper. She is
> using her prednisone-induced bursts of energy to clean her room and get
> ready for some school events, and she has accepted the idea that she has
> to keep pushing through the pain. I am very proud of her.
>
> I'm not doing very well myself though. I am in a full-blown flare. My
> hands and feet are inflamed, I have no energy, and my knees, hips, and
> shoulders are so stiff I feel like the tin man on Wizard of Oz.
>
> I saw my RD Thursday and she ordered lots of labs, x-rays, etc. We will
> speak by phone once she gets the results, but we will probably be adding
> Arava to my meds. She wanted to give me some prednisone immediately, but
> I said no. I just hate it. But today I wish I had some to take.
>
> I also have to push up getting my hand done. There are now 7 nodules
> between the two hands. Six are on MIP joints and 1 is on the palm side of
> the 2nd PIP on my right hand. It is "invading" the tendon that runs under
> the joint and is very painful. So my RD wants me to see the hand surgeon
> this week.
>
> My boss is not happy. We have a lot of deadlines coming up for new
> courses and he needs me at 100%. But, what can I do? It has to be taken
> care of. I am still in my probationary period though, so I am very nervous
> about this. Between the flare and the nodules, it could get very
> difficult.
>
> Anyway, that's what is going on at the Hanks household.
>
> Walt
>
.
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- Update: Amanda and My Full-blown Flare
- From: Walt Hanks
- Update: Amanda and My Full-blown Flare
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