Re: A Pity Party - want to come?long
- From: "DeeTee and Bob Taggart" <ke3iu.no@xxxxxxxxxxxxxx>
- Date: Mon, 31 Oct 2005 05:13:22 GMT
{{{{{{{Kelly}}}}}}}
DeeTee
"Kelly" <kelly.e1@xxxxxxx> wrote in message
news:r899f.354122$oW2.46819@xxxxxxxxxxx
> Well I am having a pity party if you want to come. Cheese is welcome but
> sorry due to the demerol no wine. If you have a funny joke bring it and
> if you have kleenex come on too.
>
> I have decided that too many things are happening around me and I just
> don't seem to have control over a lot of them. I have a neurologist
> appointment on Friday and a rd appointment on Wednesday but until then I
> struggle. Yesterday the cathetor came out ( blue right across the bathroom
> floor when I was trying to move the bowels - oops) and discovered that I
> really need it. By the time home care nurse got here to replace it I was
> in agony and full, full, full. Obviously the neurological problems caused
> by the enbrel are still affecting the ability to urinate. Friends built
> me a ramp outside so now I can get out if someone pushes me. Wouldn't be
> able to go on my own - couldn't maneuver the wheelchair, car etc. But it
> is a huge step. Hopefully the neuro guy will have some solutions and it
> won't be needed for long. In the meantime the cathetor is not at all
> comfortable and the nurse thinks I just can't feel the spasms that my
> urethra and bladder are doing - that perhaps they are trying to expell
> this damn thing. That theory works for me. She is coming back this
> afternoon.
>
> I am cold all the time on my legs and still getting the electric prickly
> feeling all the time. It damn well hurts - although I have cut my pain
> meds in 1/3rds as I was not taking in what people were saying and can
> control the pain not bad during the day. That is an improvement. I have
> been doing excercises religiously and there is an improved range of motion
> and an improved communication between my leg, foot and brain. Success
> although very small.
>
> My husband got back last night and that is also hard. This is so hard on
> him as well and now as well as work he has my care to do. That is huge as
> there is very little I can do to help right now. I have friends who have
> pitched in for the last week but have to start doing some hiring etc. Also
> we were undergoing marriage counselling before all this and making
> progress. That is put on the backburner for now. I am sure our marriage
> will make it but this understandably puts another strain on it. Can life
> just for once go okay! The fall has been the pits after a very tough
> summer. Pat's parents are 86 and 90 and we have just moved them over here
> from a fairly isolated island home. We have been doing the moving,
> caregiving, doctor's appointment etc. They are living on their own but
> lots of problems - macular degeneration, large unruly dog, bit of
> demential for my father in law, cancer spot waiting to be removed from my
> mother in law's cheek. Just lots of little things.
>
> Anyhow feeling overwhelmed today and of course it is raining. I don't
> often feel low or stay low but can't get much lower today. Would love to
> cry and cry and cry. Of course expecting yet another call from another
> nurse today who is going to try yet another catheter and maybe tomorrow
> some anti-spasming meds. What the hell - can't hurt.
>
> Anyhow taking my miserable self back to bed. This feeling will be over
> tomorrow I am sure but today just seems kind of bleak.
>
> Kelly
>
.
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