Re: A Pity Party - want to come?long
- From: "Kelly" <kelly.e1@xxxxxxx>
- Date: Mon, 31 Oct 2005 02:33:04 GMT
Thanks everyone. They reduced the water in the balloon and will reduce it
further tomorrow to see if that helps and if it still stays in. I can't say
that there is any difference in feeling right now. I don't think the
interstitial is any worse but hard to tell. The prednisone has been keeping
it at bay lately so kind of doubt it. I think it is just the spasming thing
like they suggested maybe. I think the disapointment yesterday was that the
bladder wouldn't miraculously work after the stupid thing fell out.
Anyhow Janice I think I have cried enough the last couple of days so I have
scheduled my quilting friends to come in tomorrow morning and I am starting
my week anew. Trying to end the pity party so to speak. I don't know what
I would do without friend's support these days - both virtually and non
virtually (if that makes sense.)
Thanks everyone. Think I will pack it in early tonight. Yesterday's shock
has still taken over my life.
kelly
"jb" <jsbolick@xxxxxxxxxxx> wrote in message
news:Gqe9f.7099$7s1.5796@xxxxxxxxxxx
> So sorry for you Kelly. You have so many things going on that now I feel
> bad ,feeling sorry for myself. I have been feeling low also. if you want
> to
> cry we can just cry together. Just give me the word as to when to start.
> take care and I will keep you in my toughts and prayers.
> janice
>
>
> "Kelly" <kelly.e1@xxxxxxx> wrote in message
> news:r899f.354122$oW2.46819@xxxxxxxxxxx
> | Well I am having a pity party if you want to come. Cheese is welcome but
> | sorry due to the demerol no wine. If you have a funny joke bring it and
> if
> | you have kleenex come on too.
> |
> | I have decided that too many things are happening around me and I just
> don't
> | seem to have control over a lot of them. I have a neurologist
> appointment
> | on Friday and a rd appointment on Wednesday but until then I struggle.
> | Yesterday the cathetor came out ( blue right across the bathroom floor
> when
> | I was trying to move the bowels - oops) and discovered that I really
> need
> | it. By the time home care nurse got here to replace it I was in agony
> and
> | full, full, full. Obviously the neurological problems caused by the
> enbrel
> | are still affecting the ability to urinate. Friends built me a ramp
> outside
> | so now I can get out if someone pushes me. Wouldn't be able to go on my
> | own - couldn't maneuver the wheelchair, car etc. But it is a huge step.
> | Hopefully the neuro guy will have some solutions and it won't be needed
> for
> | long. In the meantime the cathetor is not at all comfortable and the
> nurse
> | thinks I just can't feel the spasms that my urethra and bladder are
> doing -
> | that perhaps they are trying to expell this damn thing. That theory
> works
> | for me. She is coming back this afternoon.
> |
> | I am cold all the time on my legs and still getting the electric prickly
> | feeling all the time. It damn well hurts - although I have cut my pain
> meds
> | in 1/3rds as I was not taking in what people were saying and can control
> the
> | pain not bad during the day. That is an improvement. I have been doing
> | excercises religiously and there is an improved range of motion and an
> | improved communication between my leg, foot and brain. Success although
> | very small.
> |
> | My husband got back last night and that is also hard. This is so hard
> on
> | him as well and now as well as work he has my care to do. That is huge
> as
> | there is very little I can do to help right now. I have friends who
> have
> | pitched in for the last week but have to start doing some hiring etc.
> Also
> | we were undergoing marriage counselling before all this and making
> progress.
> | That is put on the backburner for now. I am sure our marriage will make
> it
> | but this understandably puts another strain on it. Can life just for
> once
> | go okay! The fall has been the pits after a very tough summer. Pat's
> | parents are 86 and 90 and we have just moved them over here from a
> fairly
> | isolated island home. We have been doing the moving, caregiving,
> doctor's
> | appointment etc. They are living on their own but lots of problems -
> | macular degeneration, large unruly dog, bit of demential for my father
> in
> | law, cancer spot waiting to be removed from my mother in law's cheek.
> Just
> | lots of little things.
> |
> | Anyhow feeling overwhelmed today and of course it is raining. I don't
> often
> | feel low or stay low but can't get much lower today. Would love to cry
> and
> | cry and cry. Of course expecting yet another call from another nurse
> today
> | who is going to try yet another catheter and maybe tomorrow some
> | anti-spasming meds. What the hell - can't hurt.
> |
> | Anyhow taking my miserable self back to bed. This feeling will be over
> | tomorrow I am sure but today just seems kind of bleak.
> |
> | Kelly
> |
> |
>
>
.
- Follow-Ups:
- Re: A Pity Party - want to come?long
- From: Skip
- Re: A Pity Party - want to come?long
- From: RoseB
- Re: A Pity Party - want to come?long
- References:
- A Pity Party - want to come?long
- From: Kelly
- Re: A Pity Party - want to come?long
- From: jb
- A Pity Party - want to come?long
- Prev by Date: Osteo Bi-Flex
- Next by Date: Re: A Pity Party - want to come?long
- Previous by thread: Re: A Pity Party - want to come?long
- Next by thread: Re: A Pity Party - want to come?long
- Index(es):
Relevant Pages
|
