Re: A Pity Party - want to come?long
- From: "Kelly Cobb" <kelly.cobb@xxxxxxxxx>
- Date: Sun, 30 Oct 2005 11:41:15 -0800
((((Kelly))))
Whine away! You deserve it, for sure!
There is just nothing I can say that will help in any way, but I sure do
hope that things come around for you soon. I can't imagine being suddenly
dependent on others for the simplest things. That has to be a major blow to
your self-confidence.
I just keep hoping that you will find out how to fix this problem and get
back to your life.
Hugs,
The other Kelly. (C.)
"Kelly" <kelly.e1@xxxxxxx> wrote in message
news:r899f.354122$oW2.46819@xxxxxxxxxxx
> Well I am having a pity party if you want to come. Cheese is welcome but
> sorry due to the demerol no wine. If you have a funny joke bring it and
if
> you have kleenex come on too.
>
> I have decided that too many things are happening around me and I just
don't
> seem to have control over a lot of them. I have a neurologist appointment
> on Friday and a rd appointment on Wednesday but until then I struggle.
> Yesterday the cathetor came out ( blue right across the bathroom floor
when
> I was trying to move the bowels - oops) and discovered that I really need
> it. By the time home care nurse got here to replace it I was in agony and
> full, full, full. Obviously the neurological problems caused by the
enbrel
> are still affecting the ability to urinate. Friends built me a ramp
outside
> so now I can get out if someone pushes me. Wouldn't be able to go on my
> own - couldn't maneuver the wheelchair, car etc. But it is a huge step.
> Hopefully the neuro guy will have some solutions and it won't be needed
for
> long. In the meantime the cathetor is not at all comfortable and the
nurse
> thinks I just can't feel the spasms that my urethra and bladder are
doing -
> that perhaps they are trying to expell this damn thing. That theory works
> for me. She is coming back this afternoon.
>
> I am cold all the time on my legs and still getting the electric prickly
> feeling all the time. It damn well hurts - although I have cut my pain
meds
> in 1/3rds as I was not taking in what people were saying and can control
the
> pain not bad during the day. That is an improvement. I have been doing
> excercises religiously and there is an improved range of motion and an
> improved communication between my leg, foot and brain. Success although
> very small.
>
> My husband got back last night and that is also hard. This is so hard on
> him as well and now as well as work he has my care to do. That is huge as
> there is very little I can do to help right now. I have friends who have
> pitched in for the last week but have to start doing some hiring etc. Also
> we were undergoing marriage counselling before all this and making
progress.
> That is put on the backburner for now. I am sure our marriage will make
it
> but this understandably puts another strain on it. Can life just for once
> go okay! The fall has been the pits after a very tough summer. Pat's
> parents are 86 and 90 and we have just moved them over here from a fairly
> isolated island home. We have been doing the moving, caregiving, doctor's
> appointment etc. They are living on their own but lots of problems -
> macular degeneration, large unruly dog, bit of demential for my father in
> law, cancer spot waiting to be removed from my mother in law's cheek.
Just
> lots of little things.
>
> Anyhow feeling overwhelmed today and of course it is raining. I don't
often
> feel low or stay low but can't get much lower today. Would love to cry
and
> cry and cry. Of course expecting yet another call from another nurse
today
> who is going to try yet another catheter and maybe tomorrow some
> anti-spasming meds. What the hell - can't hurt.
>
> Anyhow taking my miserable self back to bed. This feeling will be over
> tomorrow I am sure but today just seems kind of bleak.
>
> Kelly
>
>
.
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