Re: ~*Online WACOC News October 2011*~
- From: Diana Saba <dgsaba@xxxxxxx>
- Date: Wed, 26 Oct 2011 11:07:09 -0700 (PDT)
Women and Children of CFIDS + Men
WACOC + M
~*A comment or two*~
Retuximab clinical trials welcomed
The National CFIDS Foundation has been following the story about retuximab
in the first clinical trial in the world from Norway with interest.
Although the authors acknowledge that more work must be done with larger
trials,
the intial small trial is welcome news to the CFIDS/ME community
worldwide. Two years ago, retuximab was first suggested as possibly being
helpful
for those with this illness by Dr. Yoshitsugi Hokama, a researcher (now
Professor Emeritus) from the University of Hawaii's John A. Burns School of
Medicine while being funded by the National CFIDS Foundation along with our
federal NIH. The suggestion can be seen at the end of the article on the
ciguatera assay PDF on our website. The assay has, via fully replicated
science, become the first biomarker for autoimmune diseases and thousands of ME
patients worldwide have tested positive to date. The testing protocol is
available on our website. The article suggesting retuximab can be seen
here:
http://www.ncf-net.org/pdf/AnticardiolipinAntibodies.pdf
Our all-volunteer charity will continue to pursue the cause of CFIDS/ME as
our priority with all donations going toward research with no percentage
held back.
For better health,
Gail Kansky
President, National CFIDS Foundation, Inc.
103 Aletha Rd.
Needham, MA 02492-3931
781-449-3535
http://www.ncf-net.org
https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind1110d&L=co-cure&T=0&P=4779
But the "treatment" is not viable as it only lasts for a while --- depends on severity. Some go into remission. We found that out years ago when, in the newsletter, our medical director asked to have patients who had been on chemo contact him as some got so noticeably better for a while. They only had one drug in common who had that effect but it didn't last as they were all severe. If one had a milder case, it could put them in remission for a time...but not forever! And it's dangerous!!
Found this on "non-HIV AIDS" that we know is really CFIDS/ME:
http://www.autoimmune.com/Non-HIVAIDSGen.html
Radioactive half-life of 4.5 billion years...
http://www.naturalnews.com/022629_Hawaii_military_health.html
This does not surprise me...
U.S. Labs Not Equipped to Handle Radiation Disasters
http://www.medpagetoday.com/PublicHealthPolicy/EnvironmentalHealth/29005
One more time... John Hall - 'I Told You So'
http://www.youtube.com/watch?v=hpCmD59SqqQ
In memory of those remembered
http://www.ncf-net.org/memorial.htm
Dust In The Wind
http://www.youtube.com/watch?v=n8xC-RQ1W3g&feature=related
In My Life
http://www.youtube.com/watch?v=zI0Q8ytD44Y&feature=related
The Sound Of Silence
http://www.youtube.com/watch?v=BvsX03LOMhI&feature=related
If you're a true friend join me on Facebook. It may take a bit to confirm you, but I'll do my best to keep up!
Soft hugs & prayers,
Diana Saba
Disabled Retired Nurse
Proud member of NCF
M.E. Deserves Quality Research
"What lies behind us and what lies before us, are tiny matters,
compared to what lies within us"
~Ralph Waldo Emerson~
.
- References:
- ~*Online WACOC News October 2011*~
- From: Diana Saba
- ~*Online WACOC News October 2011*~
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