Re: update on my son.. neuropsychiatric Lyme?

A reminder from the URL posted, reflecting the difficulty
of verifying Lyme through available tests:

****begin quote****

A recent FDA Public Health Advisory statement [3] on assays for Lyme
disease warned: "A positive result does not necessarily indicate
current infection with B. burgdorferi, and patients with active Lyme
disease may have a negative test result." For example, in early Lyme
disease with erythema migrans, patients are expected to have negative
serologies because detectable levels of borrelia-specific antibodies
have not yet been produced. In later chronic Lyme disease, among
patients who were treated early in their illness, negative or
equivocal
serologies may result presumably because the early antibiotic
treatment
abrogated the immune response. In one recent study, [15] of 8 patients
with late Lyme encephalopathy who had CSF evidence of active central
nervous system (CNS) infection, half of the patients had equivocal
serologic results and one quarter were seronegative. This study, in
addition to demonstrating the presence of seronegative Lyme disease,
points out the importance of spinal fluid assays among patients with
suspected central nervous system involvement.
**** end quote****

On Sep 30, 8:51 am, Michael B <baugh...@xxxxxxxxxxxxx> wrote:
Get your son, and yourself, checked for LYME. With both
ELISA and Western blot.

Ooops, better yet, read the following article and then decide what to
do.

http://flash.lymenet.org/ubb/Forum1/HTML/000533.html

On Sep 30, 12:48 am, "jennieandch...@xxxxxxxxx"
<jennieandch...@xxxxxxxxx> >

Does anyone have experience with pediatric chronic pain and what I can
do to help him? I know that with my chronic pain I wouldn't wish it
on my worst enemy and here my own son is suffering and I can't do a
thing to help him. I have gone to the websites but they say nothing
about treatment.

Please help,
Jennie


.

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