Re: Hi again



nanny wrote:
Hi Amilee. You are a part of a group here who understands your own
frustrations and constant pain, and the fatigue which prevents you
from effectively interacting with your child. What you can't do in
"action", Amilee, you can show your toddler love with a touch, a hug,
a good book and lying down beside him/her at times, saying, "Mommy is
tired; let's take a nappy time".

I'm different from some of the people on AMF, in that "avoiding" the
word Fibromyalgia to the medical field or friends/family because they
may "tag" us as neurotic, whiny, out of touch with reality, etc. etc.
doesn't hold up to me any longer! I have an FM awareness bumper
sticker on my car; and by god, I WILL say the word Fibromyalgia when
and as often as I deem it necessary. It is nothing to be ashamed of.
The shame should be to the one(s) who call us names and ridicule us
because they are too ignorant to be informed!

Welcome to AMF! Nanny


The shame lies in the people WHO WANT to have the label of FMS and GIVE UP.
They can wear that badge if they wish.

CB!

"Amilee" <myinternet@xxxxxxxx> wrote in message
news:46fae84c$0$4057$9a566e8b@xxxxxxxxxxxxxxxxxx
Hi all,

I posted a while ago, probably some time back in Oct or Nov of last
year, I dunno, memory fuzzy!

Anyway, my doctor referred me to a rheumy finally after me asking a
few times. Fortunately, I work in the hospital and I was able to be
there for an appointment when someone didn't show up for theirs
(wait list here is longer than a year...and some docs is 3 1/2 years)

Anyway, at the time I was feeling pretty good (seems like I have been
feeling a bit better this past summer) so mostly I complained of the
fatigue. My reasoning for fatigue being my biggest concern was that
I can somehow DEAL with the pain but the fatigue prevents me from
doing things with my toddler and that is the most important thing to
me. Anyway, because I felt the fatigue was the worse thing, the
rheumy is "leaning more towards a diagnosis of CFS". The words the
rheumy said "I don't like using the word Fibromyalgia" did not
instill confidence in me anyway. (But then proceeded to give me
information about Fibromyalgia??) None of the rheumatologists in my
city see FMS patients outside their initial consult. So fine, I started
hoping that maybe, just maybe I didn't have FMS
and there was another reason for all these problems that are
cropping up with me. The rheumy told me to exercise in small spurts
so I joined a gym and I really felt good. That is, up until a week
ago. Now my joints feel stiff again, just like before the summer. The
colder Fall weather is starting here. Even my fingers wrinkle up
really gross when they are exposed to this Fall-ish weather we've
been having. To make a short story long, I am posting here to ask about
other's
experience with tinnitus associated with FMS. Just about 3 weeks
ago I started getting a constant humming in my ear that is driving
me CRAZY!!!! Is this possibly related to FMS?

As well, I have had mysterious small lumps appear on my legs and one
arm (not big enough to see but I can feel them with my finger.) I
don't think this is related to FMS but I thought I should ask some
seasoned FMS'ers in here about their experiences.

I recently read Cheeky *** talking something about FMS and how
he now knows he doesn't have it. I may have missed a lot over the
last 8 or 9 months, but I'm wondering how you found out that you had
a thyroid-related disorder (not sure if I am right about that or if
it was something else) What tests did you have to get to confirm
this newer diagnosis? I am willing to accept FMS if I really need
to, but I want to rule out anything else (maybe me trying to
convince myself that I have something wrong that can be corrected)

Nobody understands when I tell them that I have FMS and I really
hate to explain it.

Thanks for listening,
Amilee


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