Hi again

Hi all,

I posted a while ago, probably some time back in Oct or Nov of last year, I
dunno, memory fuzzy!

Anyway, my doctor referred me to a rheumy finally after me asking a few
times. Fortunately, I work in the hospital and I was able to be there for
an appointment when someone didn't show up for theirs (wait list here is
longer than a year...and some docs is 3 1/2 years)

Anyway, at the time I was feeling pretty good (seems like I have been
feeling a bit better this past summer) so mostly I complained of the
fatigue. My reasoning for fatigue being my biggest concern was that I can
somehow DEAL with the pain but the fatigue prevents me from doing things
with my toddler and that is the most important thing to me. Anyway, because
I felt the fatigue was the worse thing, the rheumy is "leaning more towards
a diagnosis of CFS". The words the rheumy said "I don't like using the word
Fibromyalgia" did not instill confidence in me anyway. (But then proceeded
to give me information about Fibromyalgia??) None of the rheumatologists in
my city see FMS patients outside their initial consult.

So fine, I started hoping that maybe, just maybe I didn't have FMS and there
was another reason for all these problems that are cropping up with me. The
rheumy told me to exercise in small spurts so I joined a gym and I really
felt good. That is, up until a week ago. Now my joints feel stiff again,
just like before the summer. The colder Fall weather is starting here.
Even my fingers wrinkle up really gross when they are exposed to this
Fall-ish weather we've been having.

To make a short story long, I am posting here to ask about other's
experience with tinnitus associated with FMS. Just about 3 weeks ago I
started getting a constant humming in my ear that is driving me CRAZY!!!!
Is this possibly related to FMS?

As well, I have had mysterious small lumps appear on my legs and one arm
(not big enough to see but I can feel them with my finger.) I don't think
this is related to FMS but I thought I should ask some seasoned FMS'ers in
here about their experiences.

I recently read Cheeky *** talking something about FMS and how he now
knows he doesn't have it. I may have missed a lot over the last 8 or 9
months, but I'm wondering how you found out that you had a thyroid-related
disorder (not sure if I am right about that or if it was something else)
What tests did you have to get to confirm this newer diagnosis? I am
willing to accept FMS if I really need to, but I want to rule out anything
else (maybe me trying to convince myself that I have something wrong that
can be corrected)

Nobody understands when I tell them that I have FMS and I really hate to
explain it.

Thanks for listening,
Amilee


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