Re: How FMS Influences Posting

On Mar 15, 5:12 am, "Janey Pooh" <janep...@xxxxxxxxxxxxxxxx> wrote:
We are all posting to a Fibromyalgia newsgroup. DUH! That means that
(almost) all of us have fibromyalgia, and that DD can greatly
influence how we post, how we read posts and how we perceive posts,
depending how we're feeling at that time.

When you think about how FM could influence a person's posting, the
possibilities are almost endless. A person posting after they've
taken their night meds might not even *remember* what they posted when
they wake up the next morning. I've seen that ahppen loads of times
on this group.

Someone who's having trouble with their fingers might not be ABLE to
post for days and days, but they might be reading all the posts
nonetheless, scrolling with their rolling mouse or whatever.

People who have regular pain between their shoulder blades should
resist the temptation to sit here and post and read for a long time,
because it adds tension to your trapezius muscles and such.

People in severe pain might be really cranky and come across as being
bitchy - or they may read things into something being said that aren't
really there <IYKWIM>. I've done it - thinking someone was being rude
to me when in fact they had no such intention and it was really MY
mood that made it seem that way.

People who are depressed may feel like they're not getting any
attention, when in fact NO ONE'S had much attention lately, because of
other crap that's going on. Not as many people are reading the group
at all, so not as many posts are being replied to.

The list goes on and on and on and on . . . Would anyone care to tell
us how having Fibromyalgia affects THEIR posting habits? For me, it's
the seizure disorder that affects mine more. When I'm not feeling
well, the screen seems flashy and words seem to float around the
screen 'n stuff, and it gives me a headache and could lead to me
having a seizure. So I don't post much at ALL when I'm not feeling
"up to par."

Fibro-wise, the worst thing is that I sometimes get too involved in
the group and it makes me stress out. Oh, and sometimes I sit here
too long and forget to eat. LOL

Speaking of which . . . gotta go eat breakfast! Anyone care to share?

Take GOOD Care,

Jane

Aloha Jane,
In Oct it will be three years since I was diagnosed with
FMS.RA,OA,TMJ,RLS and just recently PF. I suffered two years before
going to a dr because I was too scared to find out what all the pain
was about. Before being afflicted I posted daily on another ng I
cannot anymore.Fibro changed every aspect of my life, the pain is just
too much for me to type much at all any more. I cannot focus like I
used too and hardly retain what I read much even. My life has been
filled with great challenges that I am proud to have overcome. But
there is no getting over chronic illness so it goes.
The effects of FMS on my posting has been devastating.
lisa

.

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