Re: Tobacco/diet and exercise/Fibro

Heya Miz Rosie (arms akimbo, foot tapping) can you tell us just what
science "can" tell us about FMS besides part of the community still
telling us IAIYH? Seems to me there's still controversy out there and
just because there's no protocol doesn't mean it's not working for
someone. Why question someone else's reality just because it's not
yours? If you tell me you enjoy posting on this group I don't need a
study to prove how many people are benefited by posting, I will instead
give you the benefit of the doubt that it gives you pleasure even
though I no longer get the same pleasure.

I honestly am not seeing much more than movement in the field than
agreement that this is a constellation of symptoms that in most of our
cases seem to be masking other conditions - who among us has only FMS
and nothing else? Yet, we get the general FMS dx and are told to deal
with it best we can with most drs hoping we'll quietly agree to accept
NSAIDs and ADs and go away.

Yes, common sense and open minds will ease people's lives as the years
drag on and we wait for research dollars to trickle in and grants to be
written and the ideal study to be conceived. In the meantime, we can
bring more positive energy into our own lives by simply rejoicing that
others are finding relief even if we haven't - what goes around comes
around in myriad ways. Sending warm hugs for your "jints"

BTW given how easily studies can be influenced by the underwriter, do
you really put all your faith in "science"?

Only fifty years ago doctors were pushing cigarettes on TV, lol. How
many meds have claimed to have been safe and have later had to been
recalled? Science has its place but so does wisdom.

Best wishes;^)
renee



Rosemarie Shiver wrote:
It's not my opinion that it's medically unsupported. If diet and
exercise for Us FM'ers were medically supported there'd be a treatment
protocol for FM that the majority of FM'ers respond to and obtain relief
from. If HIV'ers and ppl.with AIDS can have an effective treatment protocol
for their majority, why don't we? Your own example, BTW. We don't and you
can't gloss over that fact, Carol. Unless you're being close-minded and
judgemental about the facts and how they pertain to ppl. with FM. Also your
words.

There ain't no getting around the scientific facts....and you oughta know
that, given your profession, there's no medicine there. Do try not to be
careless about fact vs.opinion. Or the perjoratives you use, as well.

Last I looked it still sez.alt.med.in the title of this NG. That's not an
opinion either. Anyone and everyone can see that fact, it's undeniable.
Where's the med. in Devin's suggestion? That's all it is...not a treatment
for FM in the least. No science or medicine there. No studies or comparative
analysis...just an opinion. If it were medicine there'd be double-blind
studies supporting the medical benefit rather than a Devin anecdote,
suggestion, piece of opinion. Or any one else's.

In real life, what does FM have to do with it? In fact, nothing. That's
a fact that the scientifically literate can't refute. And you are thus, so
there actually is no argument. Wise of ya not ta argue it because you do
know better from a medical/science viewpoint.

Facts without Name Calling Hugs,
Rosie S.
Dame of Dementia




--
"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat
Outta Hell II
"Carol J" <haveaniceday@xxxxxxxxxxx> wrote in message
news:FK-dnZdXNsSZZWzZnZ2dnUVZ_sudnZ2d@xxxxxxxxxxxxxx
Well Rosie:-) Dang it all girl but you know that's just YOUR opinion:-)
Even the leading authority on FM/CMP D. Starlanyl will tell you otherwise
about diet and gentle exercise:-) Not wanting to argue with you, just
telling you that opinions are just that, opinions and if anyone decides to
do their own homework and try to limit their symptoms or flares by trying
what she suggests in her book, Fibromyalgia and Chronic Myofascial Pain
then
they should do just that. No one ever gets any better by just sitting
around
and moping about it. Or zonking themselves into oblivion with narcotics
either. If you don't believe that it works then fine, that's your belief.
I know different for my own experience. Obviously others do too. One
thing
I know about medicine and science..........you can never say "always" and
you can never say "never"..........cuz someone will prove you wrong. Just
my 2 cents.

Carol J

"Rosemarie Shiver" <post147@xxxxxxxxxx> wrote in message
news:4le8vfF1ehuoU1@xxxxxxxxxxxxxxxxx
What's the connection between tobacco use and Fibro? None. If you smoke
and quit will you help ease your FM symptoms? Maybe, but probably not.

I quit tobacco over 2 1/2 years ago. Did I have any easing of the
number
and severity of my FM flares? Not at all. So I can give you anecdotal
evidence that quitting tobacco doesn't help you with FM pain. It's only an
anecdote from me and you can take it or leave it as an opinion, a story.
Not
scientific evidence.

Quitting tobacco has helped my overall health but did nothing FM wise.
It
helped my costochondritis pain because I'm not attempting to coff up a
lung
each day...and costo is often centered in the chest area so there is a
direct physical reason for cause and effect there.

But smoking doesn't cause FM. All smokers don't come down with FM. Not
even most get FM. A minority of smokers do get FM. Cessation of smoking,
therefore, is not a treatment for FM pain. Not a cause so don't expect the
effect when you improve thru quitting. It's good to quit for other
reasons;
but relief from the pain of FM isn't one of 'em.

The same illogical cause/effect relationship is given here between
diet
and exercise and FM pain. Our local diet/exercise/supplements Taliban will
try to tell you there is a direct correlation between quality of diet,
physical fitness and type of supplementation consumed and FM pain. There
is
no such thing and don't believe it for a second. If there were everyone
who
is obese or not physically fit and nutritionally not optimized ought to
have
quite a few of our FM symptoms and they don't. Not even most. A few
do...similar to the # of smokers with FM as to the population of smokers
as
a whole.

Do it if you will...but don't do it as a treatment for FM. That's
fallacious and medically unsupported. Merely anecdotal...a story, a tale.
The statistics don't lie but the ones who misquote 'em do. And anecdotes
are
just stories. They don't have the medical double blind studies to back
them
for validity and reliability. You can take 'em...but you're also allowed
to
leave 'em if they don't work. Without guilt, without feeling you failed.
The
advice is a failure...not you. Especially with no medical evidence to
back
that advice up. That's not being closed-minded or judgemental...it's being
practical.

And if your FM symptoms don't improve at least I told ya so in
advance...and why. Same for current smokers and those that are trying to
quit. Do it or don't...FM has nothing to do with it.

Why do so many different types of MD's and health advocates not
'believe' in FM? It's not subject to an easy fix....in fact it's more
difficult to treat than HIV infection...so they don't wanna believe in
it....or us. Simple, really. FM is resistant to treatment. If diet and
exercise and supplementation ( a modified Cleveland Clinic approach) was
an
effective treatment we'd be where the HIV infected are...the majority
responsive to it and the medical condition treatable. FM sufferers aren't
responsive to any particular set of treatment protocols and the medical
condition of FM is, in fact, not treatable at this time. Don't let anyone
tell you otherwise. And that's why so many medical professionals avoid FM
like the plague. It's medically untreatable right now and has been since
before HIV ever showed up.

Anecdotal evidence isn't really evidence. It's definitely not fact.
And
it's not medicine that can be prescribed for the pain of the FM you have
that you did nothing to wind up causing yourself. Not only is this truth
but
it's also compassion for fellow sufferers.

End of story! LOL

FM'er Hugs,
Rosie S.
Dame of Dementia


--
"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf,
Bat
Outta Hell II



Rosemarie Shiver wrote:
It's not my opinion that it's medically unsupported. If diet and
exercise for Us FM'ers were medically supported there'd be a treatment
protocol for FM that the majority of FM'ers respond to and obtain relief
from. If HIV'ers and ppl.with AIDS can have an effective treatment protocol
for their majority, why don't we? Your own example, BTW. We don't and you
can't gloss over that fact, Carol. Unless you're being close-minded and
judgemental about the facts and how they pertain to ppl. with FM. Also your
words.

There ain't no getting around the scientific facts....and you oughta know
that, given your profession, there's no medicine there. Do try not to be
careless about fact vs.opinion. Or the perjoratives you use, as well.

Last I looked it still sez.alt.med.in the title of this NG. That's not an
opinion either. Anyone and everyone can see that fact, it's undeniable.
Where's the med. in Devin's suggestion? That's all it is...not a treatment
for FM in the least. No science or medicine there. No studies or comparative
analysis...just an opinion. If it were medicine there'd be double-blind
studies supporting the medical benefit rather than a Devin anecdote,
suggestion, piece of opinion. Or any one else's.

In real life, what does FM have to do with it? In fact, nothing. That's
a fact that the scientifically literate can't refute. And you are thus, so
there actually is no argument. Wise of ya not ta argue it because you do
know better from a medical/science viewpoint.

Facts without Name Calling Hugs,
Rosie S.
Dame of Dementia



.

Relevant Pages

  • Re: Tobacco/diet and exercise/Fibro
    ... but that those 2 alone won't take away all the symptoms of FM. ... At least that's my humble opinion based on my years of experience. ... If HIV'ers and ppl.with AIDS can have an effective treatment ... know better from a medical/science viewpoint. ...
    (alt.med.fibromyalgia)
  • Re: Tobacco/diet and exercise/Fibro
    ... At least that's my humble opinion based on my years of experience. ... If HIV'ers and ppl.with AIDS can have an effective treatment ... No science or medicine there. ... know better from a medical/science viewpoint. ...
    (alt.med.fibromyalgia)
  • Re: Tobacco/diet and exercise/Fibro
    ... Science has its place but so does wisdom. ... If HIV'ers and ppl.with AIDS can have an effective treatment ... analysis...just an opinion. ... know better from a medical/science viewpoint. ...
    (alt.med.fibromyalgia)
  • Re: Tobacco/diet and exercise/Fibro
    ... And that's even if that particular treatment plan ... eating a high fat diet does not in any way, shape or form cause high blood ... It's not my opinion that it's medically unsupported. ... know better from a medical/science viewpoint. ...
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