Re: Fibromyalgia cure?
- From: "Janey Pooh" <janepooh@xxxxxxxxxxxxxxxx>
- Date: 1 Jul 2006 01:11:12 -0700
drkenrich wrote:
Janey Pooh wrote:
Normally I would just skip right past a header like this - one that has
the word *cure* in it. >
<snipped>
Dear Janey Pooh,
I hope that is your real name.
No. It is my 'nick' - my nickname. But Jane is my real name and
almost everybody here knows my full name and why I call myself Janey
Pooh.
As for someone elses slam on my name, it
really is Ken Rich and I really am a retired physician. You can read
about that below.
I don't usually bother to question peoples' posting names. Why bother?
A name means nothing on Usenet, really. It's all anonymous.
In answer to your questions and concerns, they are valid and good.
Thank you. They are also *very* obvious to anyone who's been reading
and/or posting to this group for any length of time. I'd have to say
that, if what you say about the doctors you trained is true, the people
on this group know 142 times as much about Fibromyalgia as they do. So
you have to 'raise the bar' when you talk to us about the condition we
all suffer from.
The
title was NOT to stress that I had a cure, but to question if there
really is one.
Then I strongly recommend you take the word CURE out of your header and
any literature you may be providing to PWFMS. I have long been a
proponent of not *worrying* about the CAUSE and CURE, but rather,
treating the symptoms. Worry causes stress and stress exacerbates the
symptoms of FMS. So all you're really doing is making people all
stressed out about whether or not this might actually be a CURE. It's
not. Like I said in my last post to you - it's a *treatment* for one
of the symptoms. And you really do have to explain the difference
between Fibromyalgia Syndrome and Myofascial Pain Syndrome, or you'll
get called on this every time you post to a fibro group.
<IOW> - in other words - it appears we all know more about this than
you or your students do. We have a lot more time to research what
scientists are looking into nowadays.
If you review my web site, you will find that much of
what I discuss is NOT a cure but a personal method of dealing with and
relieving pain.
Then don't call it that or mention the possibility. Period.
Since fibromyalgia is the ultimate example of how TPs
can affect the body, the post here is valid.
Except that you do sell products and you do ask for donations to the
not-for-profit organization - and advertising such in a Usenet group is
against TOS - Terms Of Service. We also probably know a lot more about
Usenet than you do, so I can understand why you would be confused about
this.
The key issues raised in your questions are not currently known or
understood at present by any researcher I am aware of.
They are currently the most valid research being conducted right now
<IMO>.
But please don't
take my not addressing those issues as an example of not being aware of
or understanding them. I do.
The problem with any educational process is that you have to provide
the information in a method and level of presentation based on the
student.
And in this case, you have to provide the information in a method and
level of presentation commiserate with the people you are talking to
NOW - people who have been suffering for decades and who have read
everything there is to read about fibromyalgia and myofascial pain and
trigger points and tender points. Like I said, you have to "raise the
bar" when you're talking to people who've spent years trying everything
out there and reading up on everything they could find about fibro. WE
WANT A CURE, so we've looked harder to find one than most have.
I have taught 1000s of doctors, etc. and found that the vast
majority of them have very little understanding of the subject matter,
Well, we have very MUCH understanding of the subject matter. You don't
have to dumb it down for us, or simplify it, over-generalize it or make
it out to be more than it is. It's condescending and it may be a
source of false hope. And it's incorrect information. Trigger Points
and Tender Points are not the same.
muscle physiology or pain itself. To too many of them a simple pill
cures all. One of the things you mentioned was the vast range of
symptoms of FM. That is true. When I used to teach doctors, I provided
them with a list of over 60 different diverse patient symptom
complaints they would see on a normal patient intake form. I would
explain to them that a new patient just came in and checked EVER SINGLE
SYMPTOM and then I asked the doctors to discuss their probable initial
diagnosis and process of examination to determine the proper care of
the patient. About 98% of these trained physicians suggested that it
was a mental problem and they would refer to a psychiatrist.
This is very sad to hear.
Rarely did
any one come up with the proper diagnosis of FM. Hoepfully from that
you can see why I don't go into much depth on my website concerning
these additional questions. There are a lot of sites available with
this information and my purpose was to provide information on a method
of self control of the most prominant complaint - pain, not to
duplicate what is already available from other sources.
Most doctors use the Merck Manual for diagnositic purposes. What I
stated comes directly from that and doesn't even go into the other
issues you raised (their lack of understanding) and/or their
understanding of the lack of understanding by most physicians. Is what
I give a cure? NO, ABSOLUTELY NOT!!!
Again - don't use the word, in ANY of your literature. Just a
suggestion, if you don't want to get jumped on so badly when you try to
explain your theories and treatments to a group of people with Fibro.
However, it is a good help for
those willing to try something other than living with the pain, living
on pain meds, or undergoing some surgery that will probably fail.
Oh, we've tried LOADS of other things, believe me - chiropractic care
gets discussed a lot around here, as does acupuncture, trigger point
injections, massage therapy, Rolfing, Reiki, and many moany other
'treatments'. None are a cure. What's worked best for ME is stress
reduction and a healthy balanced diet - and not stressing out my Tender
Points.
Try reviewing the site in more detail and I believe you will see more
that you like on the second go round.
I went to both the patient portion and the professionals portion and
read all the way through before I posted to you the first time. I am a
trained Journalist - I like to do my research before saying things. I
won't say your site is BAD, but I would say you need to stop
over-generalizing, to us AND to those students of yours. There is so
much more to Fibro that you don't even get into at ALL. I believe most
of it is Neurological and that can't be changed with all the appliances
in the world - even a tennis ball.
Take GOOD Care, Ken,
Jane
.
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