Re: Off To The City



Jane, just remembered seeing all you were going through last time I was
around. Sure am glad your doing better.Hope everything goes just the way you
want at the DR's.
Sorry you are still hearing,I don't know. It is now my biggest pet peeve in
the world.My Grandson was hospitalized with a virus last year and I got that
from a DR.The babies Dad said he'd never heard such a grand cursing out
without even using curse word's. He was a young DR and I bet he will think
twice before saying that again.
Once again, I'm wandering off the subject. Good luck and lots of warm,
fuzzy(only kind I have) thoughts coming your way.
Nina
"Janey Pooh" <janepooh@xxxxxxxxxxxxxxxx> wrote in message
news:1139395728.434419.75290@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Well, I'm off to the big city on Thursday and Friday for my one-year
post-op workup. On Thursday I see the Epileptologist and then on
Friday I have an MRI of my head and then a consult with the
Neurosurgeon, who will tell me if anything's changed since the surgery.
I'm going to see if I can get a copy of the CD to bring home and go
over with my GP.

I have an appt. with the Psychologist today to 'prepare' me. Last
time, I had no idea what was going on, why I *needed* an MRI or
anything. They'd already seen my annie on the CT Scan, but didn't tell
me. I found it disconcerting to have my head and body strapped down
like it was, and the loud banging noise the MRI makes made me pass out
in about eight seconds. I was 'out' for almost the whole time - they
had to shake me and tell me it was over.

This time, I know why I'm there. I'll prolly still hate being tied
down like that (angiograms of your brain are FAR worse for that
feeling) and I know I hate that noise the machine makes. We'll see how
that goes. That's part of the reason I'm going to see my psych today -
maybe he'll give me some coping mechanisms or something. He said he
can't hypnotize me because of the epilepsy. Dang!! I thought that
would've been good.

From the Epileptologist, I'm hoping she'll adjust my meds so I'm not so
sleepy all the time - though that may be more fibro related than
anything else, at this point. I also want to talk to her about
Myoclonus every single evening - bad shakes and twitches, either in my
leg or my arm or my head or several together. Drives me nuts. Trying
to control it is like trying to stop salivating or breathing or
something - almost impossible. The actual seizures are down to about
one every two or three weeks, which is GOOD. But I need to have some
kind of test for hypoglycemia, I think. When I eat has a HUGE bearing
on how I feel.

I bashed my head last night. :o( Doing dishes, cupboard door open,
leaned forward and SMASHED my forehead into the edge of the cupboard
door. This morning I have a goose egg and obvious red spot - broke the
skin a bit. What's disconcerting is how I let an incident like this
TOTALLY ruin the rest of my night. Well, maybe not how I *let* it. My
brain just went into "wacky" mode. Started bawling, had to sit down,
words started coming out wrong - basically just a total mental CRASH
from the way I was behaving a minute before it happened.

Best case scenario - I go and find out the platinum completely filled
the aneurysm and it hasn't grown at all or sucked up the coils or
anything like that. A job well done. We discuss the epilepsy and
everyone will tell me they don't know why - as usual. LOL Won't get
into worse case scenarios. They suck.

Don't know if I'm coming back between the two nights or if Clancy's
gonna try to find a cheap motel room for Thursday night. We'll see.
Depends on the weather 'n stuff.

Wish me luck please. Luck that the best case scenario *is* the case,
and luck that the MRI experience goes okay, without any panic or crying
or whatever.

And Take GOOD Care,

Jane
p.s. - sorry I haven't been around much. Life has gotten in the way.
;o)



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