Re: Abuse -- Not sure I can keep going on with this...

Please See Text Comments written Below:

> I hope you consider me one who has been supportive.

Yes I do. Thank You.

>
> Gang, I did some backtracking and found Jamie's first (or one of his
> first) posts to this group - on Jan. 21, 2005 - almost a year ago.
> Hope you dno't mind me repeating your words, Jamie:
> There's one from August where he listed his doctors and meds and
> treatments at that time, called "Complex Situation, Possible
> Solutions". It's quite long, so here's the link:
>
>
http://groups.google.ca/group/alt.med.fibromyalgia/browse_frm/thread/720854c2214a6512/2aefced9afc8f520?q=jamie+dolan&rnum=66#2aefced9afc8f520

> I believe Jamie is a real poster with real problems, just like most of
> us in here. During calmer, more coherent days, he explained that he
> tends to post frequently, perhaps TOO frequently - and apologized for
> it in advance.

Thank you again, I appricate very much having someone else explain this to
the group.


> Now, Jamie - from reading your most current posts and your earlier
> ones, it appears to me that you're having more problems now than you
> were then. Specifically, I've noticed far more typos and sentence
> slippage, and less understanding of other peoples' posts. I believe
> you said you were on Inderal for your Asperger's but went off it. Is
> it possible you're having more Asperger's problems lately because
> you're not taking the meds that your doctors prescribed for it?

I am not really sure what is happening. I understand what you are saying.
I do see it. Overall, I have been more calm, and less upset at things
recently than I have been in the past. The biggest thing that chaged in the
past 2 months or so is that my pain increased like 10 fold from where it was
before. It is way way higher, and it is harder to deal with. I am sure
that the narcotics do have a little bit of an effect on my judgement also.
In addition to being forced to stop the inderal due to asthma (I did talk to
2 doctors about this, mine is out of the country right now, and my other doc
I would talk to about this is the one that just died). In addition to that,
I have not taken my dexidrine on as regular of a basis as I noramly would
have. I ran out, and Didnt have money for it again. It does make a pretty
big difference overall. It helps with not only concentration, but mood,
depression, and fatigue, and proboly helps me to ingore pain as well. So I
think it is really a combination of additional pain, some cognitive effects
from the narcotics, and some problems from not doing dexirine as well as I
noramlly would.

> I'm not trying to condemn you or anything, Jamie. I'm trying to help
> you. You seem less "together" in your writing and interactions and in
> your posting style than you were six months or a year ago. You've come
> across as erratic to some - asking tons of questions one minute, then
> being the expert at things another minute, then back to asking tons of
> questions . . . that could be why some don't trust you.

Yes. I see that, as I mentioned above, and I do understand you are being
helpful. Thank You.

Basically to give the quick summary of things that have been affecting me in
the past 2 months or so:

1. Councior abondanded me and would not return me calls at all or make a
referal. I find a formal complain with the state last week.
2. Narcotics are reducting pain, but I think they also may affect my
judgement a little bit.
3. Not much money for Scripts, So I have not been taking everything as I
should, esp Dexidrine.
4. Lots of new Asthma problems in the last 2-3 weeks that have been
difficult to deal with.
5. My pain increase 10 fold in the past 1-2 months.
6. I can't go see my chiropractor due to insurance dedub.'s and co-pays. My
back in in pain now also.
7. 2 Bad relationships with women. (In the past 2 months) Both lied to me
about a criminal histroy, and one ever has arrest warrents outstanding.
8. In the past 2 months, money has gottent to be more and more of a problem.
9. One of my favorite doctors got very sick about a month ago, and died this
past week, a death of someone you care about is always hard.
10. Faimly: My grandma is getting more ill.
11. My X karen has been hanging around, and been nice to me, act like she
wants a relationship, but then this past week, tells me she doesn't. This
is hard to be lead on like this, and then dumped.

All of these problems have lead to additional stress and frustration. My
doctor that had died helped me to get well enough so I didnt need more of
the pschyc medications. And I think I am doing extremely well considering
all the stuff I am dealing with. On the other hand, it is hard because she
is no longer there for support.

I don't know why I have the memory lapses or times when my brain is working
really well, and others times then it seems dead in the water as you
mentioned. None of the doctors can figure it out either. The
neuropschylogist calls it "Executive Disfunction" and blames it (most
Likely) on a organic cause of unkown orgin. The Neurologist I saw says it
is from "Complex Migranes" and it developes because of the migrane auoras.
Which I am not told can happen at any time, whether or not I have other
symptoms or a migrane it self, I am told this can affect me memory and
thinking. In addition to that, I am told that the "Fibro Fog" Could be
causing problem, but there is nothing that can be done to help that.

I hope this helps explain what is going on with me, perhaps I should have
shared some of this before, but it hard to know what to share when,etc.
Also, Today is the first time in nearly 2 weeks that I got my Dexidrine
filled and I am using it again. I do feel better and more in order.

Thanks for your help in clarifying things, and thank you for your support,

Jamie

>
> Just wondering. I know first-hand what having an erratic brain and
> erratic emotions can be like.
>
> Take GOOD Care, {{Jamie}}
>
> Jane
>


.

Relevant Pages

  • Re: Abuse -- Not sure I can keep going on with this...
    ... >> Hope you dno't mind me repeating your words, Jamie: ... >> you're not taking the meds that your doctors prescribed for it? ... > depression, and fatigue, and proboly helps me to ingore pain as well. ... > is no longer there for support. ...
    (alt.med.fibromyalgia)
  • Re: pain management doctor needs our help.
    ... He also wants stories about chronic pain patients of any type. ... He said that you can make it annonymous or keep your doctors ... where we go for support and things like this. ...
    (alt.med.fibromyalgia)
  • Re: TENS
    ... that I have spoke of doctors and rhemtologist and such that I go to. ... > Not only have they faked being in pain, ... and you'll understand why you and Jamie have had the ... > place runs on trust and many of us feel that that trust has to be earned, ...
    (alt.med.fibromyalgia)
  • Re: Saw the Dumb Pain Doctor Today
    ... When I get that legal HMO info, ... You may as well make it complete set, and hate the lawyers too, (which I ... grease, logically or not, so be a pain in the ass to your ... Despite doctors' claims that they need shelter from being sued, ...
    (alt.support.chronic-pain)
  • Re: Saw the Dumb Pain Doctor Today
    ... never lie when asked if the tests hurt. ... or staple it together (it wont be worth ruining your good stapler, ... grease, logically or not, so be a pain in the ass to ... Despite doctors' claims that they need shelter from being sued, ...
    (alt.support.chronic-pain)