Re: Is it all in my head?

Hi Jane,

I'm just poking my head in for a quick look, not up to posting much at the
moment still having problem with my fingers I repeat taps on the keys and it
is a very frustrating. I just have to tell you that this would do you well
to send a copy to *all* your doctors and him, I also would suggest you send
this to your local paper I think it would be a good article. Everyone in a
practice should have a little knowledge of all the patience in that
practice, it is good to have one physician see you on a regular basis but on
the off chance you or anyone should have to see one of the *other* doctors
they need to be on the same page.

{{{{{{{{{{{{{{{Jane}}}}}}}}}}}}}}}}}

Sorry you had to go through this.
Nancy H

Janey Pooh wrote:
> Morning Rant - Tear Warning!! I'm crying right now, so this might be
> a bit 'over-the-top' emotional.
>
> Sunshine&Lollipops wrote:
>> It's AIYH and your all just a bunch of slackers.
>> <grin>
>
> Yesterday a doctor told me this about *MY* problems too.
>
> My good family doctor's on holidays, so Clancy suggested I call and
> make an appointment for when he gets back - be first on the list, so
> to speak. I called and the nurse told me "He's away until the 28th
> and you need help before that, Jane. We have a new doctor on staff. I
> don't know what he's like as a doctor, but he's really nice. Come in
> today at 11:00."
>
> I felt *wrong* about it - didn't want to re-hash everything all over
> again and what could he do, really? Well, maybe make a referral for
> me to see my Neurologist faster or something, but not much else.
>
> WELL - I sat there for 15 minutes listening to him tell me I just
> needed to get in touch with my God more, quit fretting and just be
> glad I'm alive. His idea - I should stop taking the meds my
> neurologist and family doctor have me on and get out and DO things.
> He said he could 'feel' that I didn't have a problem and he LAUGHED
> at me when I said, "Well, what about the falling down? What about
> the not being able to walk? What about the Aphasia and the
> headaches?"
>
> He told me he's Hindu and if he was me, he would fall back on his
> faith in times like this. Just be glad I'm alive and get on with my
> life. Suck it up.
>
> Well, he'd fall back on a lot of curbs and stairs and hard surfaces
> and hurt himself if he did that, <IMO>.
>
> Said he could *tell* I'm not brain damaged at all, because I can carry
> on a conversation and sit in the chair and make it down the hall and
> such. Did he know me *before*????? NO!!
>
> He had me bawling my head off again and he got Dylan VERY angry.
> Dylan has *seen* it, watched it all happen - he's BEEN here. And he
> knows who I was before. He told me he's just sorry he couldn't get
> up the gumption to tell the guy off. How *dare* he??!! He basically
> told me he could read my aura and knew I had no problems.
>
> What was that about needing a Medium, Michael?
>
> When I told Clancy, he said, "Well, if you've been faking it all this
> time, you have other, equally serious problems. It must be hard to
> fake your pupils going all whacky like they do."
>
> WOW! Crying again just thinking about THAT one! (He was being
> facetious.)
>
> I have said all along that I think *some* of my problem is
> post-traumatic stress disorder. But I had symptoms before this stress
> *happened*. I had my constant headache in the same place for YEARS
> and everyone told me it was stress. I had several small seizures, but
> didn't recognize them as such, because all I knew about epilepsy was
> what almost everyone else knows (what Grand Mal is like). I had a
> Grand Mal, or at least a Complex Partial, that finally convinced
> someone to send me to have my head examined.
>
> And lo and behold - I was *right* to have been worried about those
> symptoms all that time before. I had a huge brain aneurysm.
>
> But now I *still* have some doctors telling me the symptoms I'm having
> are 'nothing' and that I should just learn to live with them and be
> glad I'm alive and thank my god and get on with my life.
>
> "It's Easy." He SAID THAT to me!!
>
> Even if *all* my symptoms were caused by post-traumatic stress
> disorder, that too is an illness that should be dealt with with
> patience, understanding and REAL care. It should be (and IS) accepted
> as a *real* illness and doctors who send their patients home in worse
> shape than they arrived, by telling them it's EASY and they just need
> to trust their god and pull their socks up - should have their
> licenses revoked for providing such poor care <IMO>.
>
> First Do No Harm!
>
> It is *not* imaginary. Fibromyalgia is *not* imaginary. Seizures are
> *not* imaginary. Giant aneurysms are *not* imaginary.
>
> I'm not even going to use the term All In Your Head anymore - at ALL.
> It *is* in my head - my aneurysm, my epilepsy, my PTSD *and* my
> fibromyalgia. They are ALL taking place in my brain. But they are
> NOT imaginary and they are NOT problems I can deal with by "just
> cheering up a bit."
>
> He told me I could make a follow-up appt. in two days if I wanted to,
> if I'd chosen to wean off all my meds and wanted to 'talk'. Yeah,
> RIGHT!! I think I'll stick with dealing with all this at HOME until I
> can talk to MY doctors. Why would I disregard the advice of my
> Neurologist or the family doctor who's known me for five years and
> knows what I used to be like?
>
> My rant for the morning.
>
> Take GOOD Care,
>
> Jane
>
>
>
>
>>
>> "Randy" <GG@xxxxxxxxxx> wrote in message
>> news:1126086388.372490.301250@xxxxxxxxxxxxxxxxxxxxxxxxxxxx
>>> http://articles.health.msn.com/id/100108081?GT1=7003 (via Psychology
>>> Today)
>>> "What you believe about your illness influences how sick you
>>> become."
>>>
>>> Hard to believe this kinda crap is still making the rounds, but I
>>> know it is because I've heard it:
>>>
>>> Excerpts:
>>>
>>> In one study conducted by Wayne Katon, professor of psychiatry at
>>> the University of Washington in Seattle, 90 percent of fibromyalgia
>>> patients had a prior psychiatric diagnosis. Another study, at the
>>> University of Leeds, found that patients who had developed chronic
>>> fatigue were nine times more likely to have suffered stressful
>>> events and difficulties in the three months before the onset of
>>> disease than were healthy subjects. The implication is clear:
>>> Unlike other diseases, these disorders are closely connected to
>>> psychological distress, whether it takes the shape of a major
>>> psychiatric disorder or simply poor coping mechanisms.
>>> ...
>>>
>>> According to Katon's clinical observations, patients with chronic
>>> fatigue or fibromyalgia tend to be highly driven overachievers
>>> unaccustomed to feeling any loss of control. When injured or
>>> sickened, those who decide that the pain or illness has
>>> overwhelmingly and permanently damaged their bodies come to feel
>>> victimized and unable to cope. Learned helplessness sets in, and
>>> patients can find themselves perpetually depressed and inactive.
>>> ...
>>>
>>> Patients with chronic fatigue who attribute their illness solely to
>>> external causes, such as a virus, seem to stay sicker than those who
>>> acknowledge the possible interplay of psychological factors. "Your
>>> beliefs about the illness are important," says Buchwald. "If you're
>>> wedded to an idea that your illness has a single specific cause,
>>> your chances of getting better are diminished, because you're not
>>> addressing parts of the illness that could be prolonging it."
>>> Instead, she suggests, patients should focus on actively following
>>> treatment advice and avoiding social isolation.
>>> ...
>>>
>>> Because beliefs have such a powerful impact on well-being, the
>>> techniques that people use to cope with other diseases can backfire
>>> in the case of chronic fatigue. Ironically, patient advocacy groups
>>> may be more harmful than helpful, studies have suggested, possibly
>>> by reinforcing a sense of victimization or by giving misguided
>>> advice, such as actively discouraging all exercise.
>>>
>>> "The support groups are very anti-psychological," says Katon. "A lot
>>> of times they act to inadvertently reinforce illness beliefs [such
>>> as fear of relapse or exhaustion] that are potentially harmful to
>>> patients." Those in support groups often report more severe illness,
>>> and say that they feel worse since joining the group than do
>>> dropouts. ___________
>>>
>>> Unbelievable.
>>> And I've heard that very message about support groups before. Damned
>>> shrinks. "If you think it's not psych-based, *you* are the problem."
>>> Resistance is futile. You *will* be assimilated. Pay at the door,
>>> please.

--
L/P/H
(Love/Peace/Happiness)
Nancy H.
Lady of the Mountains


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